Friday, October 21, 2011

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First things first.....Happy Birthday to my wonderful hubby!!!!! Kaidence sang Happy Birthday to Mike this morning into the phone from the hospital and Mike said it made his birthday because he could actually hear her sing to him!

This is post is going to be sporadic. Today I feel discouraged. I think mainly because I am so tired. I don't think straight when I am tired. Hopefully tomorrow I will feel ready for all of this.

We are home. We still do not have many test results back. I do know that as of now her rejection is not completely gone but in control enough that she can be re-listed. That is a relief! We are awaiting the antibody test and will have those results on Thursday at cardio. Dr. E will present Miss K once again at the transplant meeting with the other transplant docs throughout the valley this Tuesday and Wednesday. This way you get many minds working together. She will be re-listed this Wednesday.....Big sighhhhh!

Kaidence looks and feels great. She is full of energy. Her appetite is incredible. Dr. D commented today that with how bad her coronary arteries are that he doesn't know how her pressures still look great and how her heart is still getting enough blood....but it is. I will take that as another blessing!

Thank you for checking in on us......

7 comments:

Rhymskii said...

Way 2 go miss K!! Telle 2night I'll dedicate my sleep 2 u. All 2-5 hours of it :) & Hopefully your hubby got my text.

Djinni said...

Still praying for Kaidence and your family. PS. My husband Mike has a birthday on Oct 21st also, although he is much older I am sure (1962).

cici said...

Happy Birthday daddy.

All the Prayers and love will see Kaidence through until she gets her healthy new heart.
Rest well.

ang said...

I wish I had checked your blog earlier in the week, we were in the ICS with Ben from Mon-Thurs and I would have loved to come say hi if I'd known you were there. So sorry! We are still praying for Kaidence and your whole family. I'm sorry about the Disney trip too. I know what a bummer it is and frustrating too that you can't just plan a little fun for your family who've all been through so much. It's hard all around when your little one is so sick. Just try to hang in there and rely on your faith. Our little Ben was only listed for two days before his heart came and that was a miracle for him. I will pray Kaidence won't have to wait long either and can begin healing soon. You guys sure deserve a rest if you ask me! Take care and please let me know if you need anything or just want to chat.
--Angela, todynang@live.com

Jess said...

We will be praying for you that sweet K gets what she needs. Hugs!

Petersen Palace said...

hang in there! Glad she has a big appetite!

Heart Mommy said...

Oh I love that little voice...It is so darling... When I saw her at the hospital I wanted to listen to her chat. So cute!!!! I will miss it being that way, but excited it is getting better. Thinking of you Always... Happy belated MIKE!!!!!