YES, WE ARE STILL HERE!!!

OK....I am back to blogging....I think! Well, I was once again waiting to post pictures of everything and still will, eventually. Parker is doing well and making improvements daily. He as well as 3 other PICU buddies had a rough day on thursday. Please remember these little ones and their families and doctors in your prayers. They desperately need it this week.
We had cardiology and all still looks well, except Kaidence's weight gain. She has lost some weight as we have been trialing her off of the feeding tube ( that has been wonderful to be without). She is 19lbs13oz (10th percentile). She has always been on the smaller side even before she got sick. We have a month to get her to eat and gain weight or else....the tube makes a comeback. I have need to get 1000 calories/day in a child that won't eat (still figuring that one out). I of course could do this in one meal but they don't seem to worried about me gaining enough. We are boosting her already boosted food but we need her to start taking more of it. Also, we got rid of all her oxygen ....yeah!!!!!!
I also have been trying to de-junk. I don't know how it happened (well I really know...it's called kids) but we have tooooooo much junk and they have too many weird toys. I cleaned out the boys closet and do you really think that I need an MC Hammer TAPE still, I mean seriously? I had a good laugh. Also a few weeks ago my sis helped me clean out my closet. Well, lets just say that I took a step back into Junior High. I don't know what I was thinking but I think I might have an illness and just can't let clothes go and I take whatever someone hands down. I haven't even worn 3/4 of them in years. Maybe it is because I know that I won't buy clothes for myself because it is more important to eat and have a house and sometimes you just have to prioritize and new clothes just isn't at the top of my list. Anyhow, I took 5 BIG black garbage sacks to the DI and yes, all from my tiny closet. I do have a sickness. Angie, you have a shoe problem, I have an outdated clothes problem. So I am getting some much need de-junking done so that my house can continue to hold our family.
We have been busy doing some fun family things that I will blog about with the pictures so that I can catch everyone up (this is after all pretty much my journal). I just wanted to quickly post and say, YES we are still here and all is well. I promise to get those pics up soon....maybe sooner than you think ( I hope)!

PARKER UPDATE!

It's about 2 am and I just got home from the hospital. It was great to visit with his family. Parker is still in surgery and the heart should be there about now. Last I heard is was doing great and they were just waiting. His mommy will call when he is done and I will post more after I wake up......goodnight. PS.....I found his care page interesting. If you read back maybe a week or so his mom talked about a blessing that Parker was given by his Grandpa. The post from that day talks about how her dad said that June 10th kept coming into his mind throughout the blessing. She went on to say they were all anxiously waiting to see what June 10th brought them. What's today's date??????? The Lord DOES have a plan.

PARKER IS GETTING A NEW HEART TONIGHT!!!

Parker's Mommy just called and told me that tonight is Parkers Night. He is getting his new heart. I find myself flooded with emotion and am so grateful to those that give these kids a second chance at life. And to think that they give the greatest gift of all when they are living their worst nightmare. Heavenly Father loves us all and has a plan for all of us. I did not know what Kaidence's plan was but knew that Heavenly Father did know what was best for her and that if I let him he would be sure that her plan came to pass and that in turn I would be prepared and strengthened to face whatever challenges that I had before me. Please keep him in your prayers as well as the family that has lost their little one this day.