SLEEP APNEA?

First of all I want to thank those of you that prayed for Sarah and her family. She has been safely returned.

Well, we have had a crazy week. Kaidence had her "well child" check-up and is gaining weight and is getting back on track with everything else. She is eating better and seems pretty happy to me. Thursday was of course cardiology. Her echo looked great and the issue from the cath lab looks much better, in fact they are now saying it is only "trace-mild" so that is another blessing. All of her other numbers look great. So Thursday and Friday we had appointments with ENT to follow up on the sleep study that I was sure Kaidence passed with flying colors......well, she pretty much flunked it. I thought she had passed because she didn't even snore once that night. Kaidence has SEVERE Obstructive Sleep Apnea. If you have heard her snore you know what I am talking about. A little bummer for us but not a big deal in the big picture (we have be through much worse). Her tonsils and adenoids are small (we were hoping they were big and we could remove them and have everything fixed, but we all know that would be too easy). We have her back on oxygen at night until we can get her set up on CPAP (about 1 month). Apparently a child Kaidence's age should have less then 1 episode (stop breathing) an hour....well, Kaidence averaged 17...yep 17, obviously not good. The doctor says she has a very crowded mouth and hopefully as she grows more room will be made. She may or may not grow out of this. Oh, I hope she does, what a bummer to go to girls camp and have to sleep with CPAP. What a bummer to have to sleep with it period. Anyhow, we have a lot of follow up appointments scheduled and need another swallow study and a bunch of other stuff to get her on CPAP. Hopefully it will be sooner than later because the apnea can cause a lot of problems with her Pulmonary Pressure in her lungs/heart and overwork her heart as well.
Other than that not much else going on. Here's the link to the ABC 4 News story from last night. You can read the article or watch the news story on the right side of the page of this link. http://www.abc4.com/news/local/story.aspx?content_id=b937ad0c-02a9-4899-b72e-412653e340ff
Anybody watch the "Hopkins" hospital story? Yes,I cried.
I have a "catch up" post written to update all of the "this'n that". I just need to download my pics. Hopefully soon. Thank you as always for your concern, support, kind words and love.

OUR FRIENDS NEED YOUR HELP!

This is a family friend that is missing. Please keep a look out for her and please rember not only her,but her family in your prayers. Thank You...The stephenson's

MY NAME IS SARAH

I RAN AWAY ON TUESDAY, JULY 15TH 2008. I WAS LAST SEEN IN THE AREA OF WEST TEMPLE AND 3600 SOUTH. MY FAMILY IS REALLY WORRIED ABOUT ME. I WAS WEARING A BLACK SHIRT AND GREY PANTS. I HAVE A KELOID ON MY CHEST. PLEASE CALL SALT LAKE COUNTY SHERIFF’S OFFICE AT: 743-7000 WITH ANY INFORMATION. Call Wendy – 801-381-7013
SARAH – PLEASE CALL 1-800-786-2929 – 1-800-RUNAWAY

ORGAN DONATION!

Tomorrow evening at 9:00om channel 4 is a new medical program called "Hopkins". It is a show that documents children and the families of those children during their journey while at the Hopkins hospital. Tomorrow evening will be a story about a young boy waiting for a heart transplant and his journey. We have been contacted and asked by Donor Services if we would do an interview on the 10:00 channel 4 evening news following the program in hopes of raising the awareness and the need for organ donation (this is for all of our heart buddies patiently waiting to get their new hearts). We agreed and it is our hope that if any of you are unsure about organ donation that you watch the "Hopkins" program tomorrow evening. We want to raise awareness and are trying to do whatever we can so that others like Kaidence can too have a second chance at life. We received our first letter this week from our donor family and are forever grateful to our sweet donor family and the dear little boy that has saved Kaidence's life. Thank You from all of our hearts, you are always in our prayers.