NEW ROOM

OK so we finally got our old room back from our last trip. Room #12. I am so excited. This has been a lucky room for us in the past and best of all - it's private. They thought they would move her since she would be here a while and the fact that she would be less likely to get sick in a private room. I wanted to let everyone know. So the last two digits of her phone number have changed to 12.

MORNING UPDATE

I am giving an update this morning because everybody usually logs in first thing in the morning and at night right before they go to bed. Things are still the same, just waiting. Kaidence had a pretty good night. They are giving her another blood transfuion today to boost her red blood cells. She is still sedated but resting well. We will continue to hold tight.

HAPPY BIRTHDAY MIKE!!!

First of all today is Mikes Birthday. Happy Birthday Mike. I love you so much and am so gratefule that I have you holding my hand as we climb this overwheling mountain that is before us. . . You are the BEST. I Love You!!!!

We went to McCaden's Primary program and he did a wonderful job. I am so proud of how much he has grown. Camden and I played "puppy dogs" while I was home. That seemed to keep him pretty happy. Not to mention his dad's birthday cake.

Kaidence has slept all day long. She also finally had a big poop. Yes, we get excited about the little things these days. Her heart does not tolerate her being moved and her blood pressure and heart rate struggle. My Aunt Deb sent me a wonderful talk about "waiting on the Lord." The following stood out to me.

"We must be content and peaceful about the spiritual nudgings we may receive and be grateful for those occasional illuminating moments of brighter light and clear understanding."

We recognize those many moments that we have had these last few months. We have witnessed the "occasional illuminating moments of brighter light" and we know with time we will gain a clear understanding. We are grateful for our many blessings.

MY HEART IS SAD

My heart breaks for those many families that I have witnessed lose their little ones. It has been sad to get to know these families and then watch them as their children are passing away. These families that have been here for a long time have been our only consistency in this place. You see them day after day and start to be each others Cheer Leaders. Little Luke passed away this evening. The 3rd baby in 1.5 weeks. What a tough little guy he was and I am so sorry for his family. That is what is so hard, you sit aside and watch this and are so helpless. All I can do is say I am sorry. All have had our same belief that Families ARE Together Forever and that brings great peace to all. I am so sorry for Luke's family, please keep them in your prayers.

I just got to the hospital today. I had some things that I needed to do with the boys this morning. All morning I have been so on edge and have felt very unsettled. I feel so much better as I sit by Kaidence's bedside. I already miss my family. If this is at all possible the PICU feels calm and peaqceful at this moment. I am not sure what it is. It is almost cozy.

Kaidence has been given an IV drip that will keep her paralyzed for now. She has been a little to happy and playful for them today and they are afraid she will wear out her heart if she keeps it up. I am sad that I wasn't here today while she was awake and playing but that is OK. We are still playing the waiting game and we continue to ask you all to keep Kaidence in your prayers and if you don't mind keeping our whole family in your prayers. We would be so grateful.

STILL HOLDING ON

Kaidence is a remarkable little girl. Her echo looked about the same which to us is at least better then worse and her left lung actually has a little air in it today. The cardiologist all think that Kaidence looks very good. They are pleased with her improvement and the fact that she is still holding her own. Their has been talk by those in charge that this weekend or the beginning of the week is a very good possibility to get a new heart. They say that it just seems that things tend to work that way on the weekends. We will have to see what the Lord has in store for her. It does make me anxious. Mike's birthday is on Sunday, maybe he will get a very special gift.

Thank you for the messages that are being left on the blog. I love to read them and they give me peace, hope and I know that we have so many people in this with us. WE love you all!

Last night at 3:30 am Mike was sweet enough to pack up the kids in the snow and come pick me up at the hospital. I was exhausted and decided to leave Kaidence on her own. That's right, I slept in my own bed.

Not much has happened today. I can't decide if that is good or bad. We have been very blessed by others. We received a phone call today from church headquarters. President Monson was asking if we would allow him to come and give Kaidence a blessing. WE of course said that would be wonderful. He has had an emergency come up so he is sending Elder Child and we are so very thankful for their love and concern. She has had many beautiful blessings and we are still praying for a miracle. Thank You to everyone for all of your prayers and support, even those of you that we do not know. Thank You.

Tomorrow Kaidence has an echo scheduled for the morning. We will keep our fingers crossed.