RYKER RETURNED TO HEAVENLY FATHER !

We are sad tonight after Kaidence's neighbor 7 week old Ryker suddenly passed away this afternoon. He is playing in heaven with his big sister that passed away 12. months ago. This family needs your prayers very much. We are so sorry for their loss and we will miss them very much. What a great family they are and will continue to be with two perfect little ones watching from above.

FAMILY SICK????

Today was hard for me because I was not able to go to the hospital to see Kaidence. I woke up feeling not right. I still don't know if I truly have anything, but I don't dare take any chances at the moment. Mike was going to see her after work but he came home not feeling well also. We can't afford Kaidence getting sick and being placed as a status 7 on the list again. I have been told that she played all day long and I am glad that I have the best babysitters ever....Don't get too jealous, I do pay a lot for them. The boys have been crazy today and McCaden was very upset at me for being sick because it meant that he didn't get to go to the Ostler's today to be tended. We are very grateful for all of the help that we are given and we prayer that you will be blessed for all of your sacrifices for us.

STILL WAITING!

Well, we continue to wait and hope that all will keep going well. Kaidence looks great and we are so happy to spend these days with her. We are so grateful to many, for without all of you this trial would be so much harder. Thank You for all of your love, kindness and support.

To all of my PICU buddies that are no longer at PCMC I am missing you all a lot today. You are always in my thoughts and prayers. If I can do anything for any of you please let me know.

CAN'T GET THE WIGGLES OUT!

Kaidence can't stop wiggling. She is rolling from side to side in her crib and is trying to pull herself up from a laying position. She no longer stays strait up and down in bed but always seems to be sideways. She loves being held and socializing with all of the nurses and staff. Her legs never stop kicking and she loves chewing on her hair comb. We love having her so awake, alert and happy. She had a dressing change today and the nurses and doctors seemed very excited about the progress that has been made with the wounds. They say they look very good and have made much improvement. We are so happy about that. We are literally just waiting and hoping for the best for Kaidence's future.

GOOD SPIRITS!

All is well with Kaidence while we wait for a heart. She seems in good spirits and see looks great. Things seems to be holding their own and we are hoping that she will get the gift of the new heart soon. Thanks to the many of you that keep our family in our prayers and thoughts. We are so grateful to you and the sacrifices that are made for our family. Happy Sunday!

PUMP CHANGED OUT!

So, things seemed to move pretty quickly this morning. The clot on the pump seemed to grow a little overnight and so they replaced the old pump with a new one this morning before I made it to the hospital. All went smoothly with that. They also did a dressing change on her wound site this morning and they feel that things are looking better and with some time should be well. During everything else we continue to wait for our pager to go off. Thank You for all of the extra prayers for our little one and our family.

BLOOD CLOT!

I know that everybody wants to see some updated pics of Kaidence. That would be Mike's department. Bug him like crazy. Ryan and everyone at Mike's work this is your mission for tomorrow.

Kaidence has had a good day today. I think that she is getting more teeth because her gums are very swollen. So swollen that one tooth is completely covered by swollen gums. I think that has made her a little uncomfortable. I dressed her in a cute pink dress which had poop all over it within the first hour. They may have to change out the pump to Kaidence's Berlin Heart because of a blood clot. They are afraid that the clot may break off and go to her brain which in turn could cause a stroke. We are hoping that they can get it taken care of fast. They have sent picture's to the team that came out to put in the pump to see what they suggest. We should hear from them soon. I am a little worried that insurance may not cover the new piece for the pump which cost $68,000.00. Ouch....We will do whatever is needed to take care of Kaidence and I would have them change it out this minute if I could. I don't like waiting and taking any chances. Her safety and health comes first no matter what. Other than that things are well. The boys are cute as can be and getting excited for Christmas.