YARD SALE FUNDRAISER FOR DAXTON!

Hello all,
Just wanted to let you know of a fundraiser that is happening for one of our little friends. Daxton is currently waiting for his miracle to happen, a heart transplant. The cook family is from Bountiful as well. Some friends of theirs have set up a huge Yard Sale for tomorrow. They are hoping to earn money to put towards Daxton's medical bills. If you have anything that you would like to donate to the yard sale please have it at the Winegars parking lot in Bountiful tomorrow morning between 6:00-7:30 AM. If you would like to shop the sale you can do so from 8:00 am -2:00 PM tomorrow (Saturday). Also, a fund has been set up at the Mountain America Credit Union titled “Baby Daxton Heart Fund.” For more information about this or any of the other fund-raising events, please call 510-0117 or 688-3636. Thanks, we live in a wonderful community!

IT'S ALMOST BEEN A YEAR!

So like I have said, the last few weeks have been a little bitter sweet to reminisce as to the fact that last year at the time we had 3 healthy children not knowing that things would change extremely. I often try to remember how easy and worry free life was then compared to our life now, even though I am so grateful for the life we do have. So this week on Sunday, July 27th will be our 1 year anniversary since our lives changed forever. I have so many mixed emotions. It seems so long ago since it all happened. In fact last year at this time we were on our family McCall, Id vacation where it all begin. We were all were SO SICK! I wanted to do something special to mark the anniversary and to celebrate how far we have come. Any fun ideas of how to celebrate (keep in mind it is Sunday)? If I was rich I would love to invite everyone over for a big picnic celebration and invite all our family, friends, ward family, nurses and doctors so that we could personally Thank You all. That of course won't be happening but do know that you all would have defiantly been invited and that we are so thankful for what you have done for us. We are so grateful for all that we have learned this last year and for how our lives have been touched for the better....forever!

HAPPY BIRTHDAY MCCADEN!

Happy, Happy Birthday McCaden. Happy 7Th Birthday. WE love you so much and are so very proud of the boy you are. McCaden you are kind, giving and almost always happy and of course, full of A LOT of ENERGY. Thanks for being such a wonderful big brother and Thank You for teaching your mom and dad about the pure faith of a child. You were our strength often when Kaidence was sick and you helped remind us that we just needed to be faithful and believe in the promises that Kaidence was given. You have had a long tough year with everything that has gone on since sis got sick but you were always loving, prayful and understanding when I couldn't be there for you. We love you and look forward to having a fun day with just you and your brother. Love You Always and Forever!!!

SLEEP APNEA?

First of all I want to thank those of you that prayed for Sarah and her family. She has been safely returned.

Well, we have had a crazy week. Kaidence had her "well child" check-up and is gaining weight and is getting back on track with everything else. She is eating better and seems pretty happy to me. Thursday was of course cardiology. Her echo looked great and the issue from the cath lab looks much better, in fact they are now saying it is only "trace-mild" so that is another blessing. All of her other numbers look great. So Thursday and Friday we had appointments with ENT to follow up on the sleep study that I was sure Kaidence passed with flying colors......well, she pretty much flunked it. I thought she had passed because she didn't even snore once that night. Kaidence has SEVERE Obstructive Sleep Apnea. If you have heard her snore you know what I am talking about. A little bummer for us but not a big deal in the big picture (we have be through much worse). Her tonsils and adenoids are small (we were hoping they were big and we could remove them and have everything fixed, but we all know that would be too easy). We have her back on oxygen at night until we can get her set up on CPAP (about 1 month). Apparently a child Kaidence's age should have less then 1 episode (stop breathing) an hour....well, Kaidence averaged 17...yep 17, obviously not good. The doctor says she has a very crowded mouth and hopefully as she grows more room will be made. She may or may not grow out of this. Oh, I hope she does, what a bummer to go to girls camp and have to sleep with CPAP. What a bummer to have to sleep with it period. Anyhow, we have a lot of follow up appointments scheduled and need another swallow study and a bunch of other stuff to get her on CPAP. Hopefully it will be sooner than later because the apnea can cause a lot of problems with her Pulmonary Pressure in her lungs/heart and overwork her heart as well.
Other than that not much else going on. Here's the link to the ABC 4 News story from last night. You can read the article or watch the news story on the right side of the page of this link. http://www.abc4.com/news/local/story.aspx?content_id=b937ad0c-02a9-4899-b72e-412653e340ff
Anybody watch the "Hopkins" hospital story? Yes,I cried.
I have a "catch up" post written to update all of the "this'n that". I just need to download my pics. Hopefully soon. Thank you as always for your concern, support, kind words and love.

OUR FRIENDS NEED YOUR HELP!

This is a family friend that is missing. Please keep a look out for her and please rember not only her,but her family in your prayers. Thank You...The stephenson's

MY NAME IS SARAH

I RAN AWAY ON TUESDAY, JULY 15TH 2008. I WAS LAST SEEN IN THE AREA OF WEST TEMPLE AND 3600 SOUTH. MY FAMILY IS REALLY WORRIED ABOUT ME. I WAS WEARING A BLACK SHIRT AND GREY PANTS. I HAVE A KELOID ON MY CHEST. PLEASE CALL SALT LAKE COUNTY SHERIFF’S OFFICE AT: 743-7000 WITH ANY INFORMATION. Call Wendy – 801-381-7013
SARAH – PLEASE CALL 1-800-786-2929 – 1-800-RUNAWAY

ORGAN DONATION!

Tomorrow evening at 9:00om channel 4 is a new medical program called "Hopkins". It is a show that documents children and the families of those children during their journey while at the Hopkins hospital. Tomorrow evening will be a story about a young boy waiting for a heart transplant and his journey. We have been contacted and asked by Donor Services if we would do an interview on the 10:00 channel 4 evening news following the program in hopes of raising the awareness and the need for organ donation (this is for all of our heart buddies patiently waiting to get their new hearts). We agreed and it is our hope that if any of you are unsure about organ donation that you watch the "Hopkins" program tomorrow evening. We want to raise awareness and are trying to do whatever we can so that others like Kaidence can too have a second chance at life. We received our first letter this week from our donor family and are forever grateful to our sweet donor family and the dear little boy that has saved Kaidence's life. Thank You from all of our hearts, you are always in our prayers.

WE ARE STAYING BUSY!

Really quickly because I have got to get the kiddos to swimming lessons, I did want to let you all know that yes we are doing ok. I have had some phone calls and e mails checking on us because I am such a slacker. Thank You for your concern and for thinking of us. I still love having that feeling of knowing people actually still check up on us. We have just been super busy and yes we even got a little weekend retreat in last week. I have to get my house clean today before I can allow myself to plop myself down and blog (and it is not too clean). I also have a lot of pictures to post (yes, still). So yes we are all doing well and I have some fun updates coming up if I could just keep from drowning in my messy house. Hope to post tonight.