This K's Dad. Not Telle as usual. I thought I would take a minute and post a quick picture of K back in the PICU. Feels different being here on a visitors visa. Strangely it feels kinda like home. Security knowing she is in good hands. I felt compelled to post this picture to compare with the one on the blog of her Berlin heart. Two years later. We hope and pray everything will work out right for our little K. There is another that could use a few prayers. K's mom is not feeling well and was kicked out of the PICU. She is a little frazzled and doesn't like it when she is not here with her angel. She could use a little comfort and good vibes her way. Hopefully a night of sleep will help her get feeling better. We love ya all and thanks for the support.

DONE!

Kaidence came out of the cath around 5:45 tonight. I could tell that Dr Gray was not as happy about things as he could have been. They really struggled trying to get that stint placed. They tried numerous times and it kept slipping away. It is somewhat "rigged" for the time being. We are not sure that it will stay in place. If it moves, they will do the open heart surgery tomorrow and remove both stints and patch her LPA andRPA. I guess that time will tell. I have been kicked out of the CICU, because I have strict orders from the doctors to go home and get to bed. Please keep her in your prayers.

Cath update #1

They took little K in around 2pm this afternoon. We will stick with the same plan as before and then admit her to the CICU. We will cross the other bridge if we have to. I hate this feeling.....I am nervous and sick to my tummy. I have been sick for the last week and a half, so last night Kaidence's respiratory therapist came in checked me out. She seems to think I have walking pneumonia and now I have a fever. Luckily I have some great friends up here that take care of me and they called my in some prescription. I have been fasting and so I took the antibiotics on an empty stomach, I knew it wouldn't be a good idea and it wasn't. Other than that we are waiting and praying. Today has been emotional for so many reasons. It has been a little rough, but we will get through. Worse things could happen. But I am still VERY worried about my K. Keep you posted.

Please pray for KAIDENCE!

Please pray for Kaidence. We will be fasting today, if any want to join in. Kaidence's stint has moved form her LPA to her RPA. They are taking her back into cath to place a new stint and try to stabilize the stint in the RPA. If they cannot do so they will take her in for Open heart surgery to cut out the stint and then patch her artery. This would be her 3rd time on bypass. It gets more risky each time you do so. She will be going to cath around noon. Please pray for my little princess. We will keep you posted.

A NEW TYPE OF HEART STENT.....COOL!

The heart cath went well. She went in at 7:30 and was out at 10:00. They said that everything went perfect. Primary Children's just got some new types of stents. Today they decided to give it a try for the first time, on Kaidence. I heard that Dr. Gray was pretty excited about it. Anyhow, this new stent is pretty cool. It is lower profile, therefore it doesnt need as much room to maneuver. It comes with the stent already attached and therefore you have less problems with it pulling away and ending up some place you don't want it. The coolest thing about is that normally, years from now after all the expanding they would eventually need to place a bigger stent. To do so they would have to go in and surgically remove the old one and then patch things up. However, with this new stent, it will grow with her into adulthood. Meaning it will never need to be replaced....AWESOME!!!!

I feel that once again the Lord was watching over us and what was best for Kaidence. I was frustrated that we didn't get it over with during her last cath, but it just didnt feel right at the time. I asked Dr Gray is it was a blessing that we didn't do it in November and he said 'most defiantly'. He said that with where the stent was needed and the angle it would have been much more risky of a procedure with the old type of stent. This one just worked perfectly for Kaidence.

We will stay the night and go home in the morning. Thank You for your prayers, we can sure feel them in moments like these.

MONDAY, MONDAY.....PLEASE BE GOOD TO ME!

I am such a slacker!!!! I almost dread logging on because I know that I am so behind. However, we are all doing very well. Happy, healthy and all that involves. I have some pictures that I want to post from Kaidence's first day of Sunbeams. She came home the first day with her crown that she made that read "I am A Child of God"....... how true that is little girl. I cant believe this day has come. She turns 3 next month and starts preschool in the fall. Wow!!!!! I didn't plan this far ahead.

Kaidence will hopefully be going in first thing on Monday to have the stent placed in her LPA. However, to keep with the tradition of cath lab.......Kaidence yet again has a cough and runny nose. We would like to have this done before her Birthday on the 23rd. So we are praying that if it is meant that Kaidence have this procedure on Monday that things will clear up. You hate to be sent home from same day surgery when you leave for the hospital at 5AM. Also FYI, if your child goes into the sameday surgery registration and the NP decides that for some reason the procedure cannot be done that day due to cough, ear infection or whatever........you get stuck with a $200-300 bill that will NOT be covered by insurance. The hospital told me it was new protocol and they now make you sign a paper regarding it. Just thought that all of our buddies that are also frequent fliers would like to know.

Life is good here and we hope that same is with everyone. We have some special friends that need some extra prayers at this time. Please pray for Ellie and Jude.

NO HEART CATH TOMORROW

I only have a second to post, but I have had people ask about Kaidence's heart cath tomorrow to place her stent. It will NOT be happening tomorrow. She has had a junky cough and her lungs are very wheezy. We have her on breathing treatments and steroids, so hopefully we can reschedule soon. Too bad we will now miss having 100% covered by insurance. We have hit catastrophic until December 31, but it January it will start all over again. That is ok though, either way it will go toward our out of pocket. We are just SOOOOO thankful that we do have good health insurance. That itself is a blessing. I hope that everyone had a great Christmas, I will update when I have some time.