You all know that Kaidence's wants to give the docs a run for their money (and trust me they should be doing A LOT of running.) Today was Cardiology, her heart looks great. It is just the white count. However, today we have the extreme opposite problem. Kaidence's white count including her ANC is much TOO HIGH. This of course is cause for concern. They are not sure how much is the shots(last one given Thursday) and how much is a sign that she may have an infection brewing. So her total white count was around 24-25 (24,000-25,0000.) Normal ( for a person not immunosuppressed should be about 15 (15,000). Now her ANC count. Her ANC was 12 (12,000) and for a normal person should be 5-6 (5,000-6,000). They took blood cultures to check for bacteria infections because she is making a bunch of ANC Bands (Baby ANC) which makes them think that the mature ones are off fighting something in her body (hopefully not her heart.) It's not good having a kid with suppressed white count to protect her heart have so many WBC. I know that she is starting to get a cold and that could add to things, but most likely not that much. We are all starting to feel a little under the weather here and Kaidence has started getting a cough. Last night I thought croup was starting to come on but we will see how tonight goes. Anyhow we are all hanging in and we will wait and see what the blood cultures bring.
Please continue your prayers for sweet little Gracie. Her family is amazing!
Homiecoming and trunk or treat
2 weeks ago
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6 comments:
I am sorry that they can not find a happy medium. Hopefully it is just something small. Are you still up at Primary's the or are you home? We will continue to pray for you guys, and of course little Gracie. These kids sure like to keep us parents on our toes. Never a moment to just sigh! LOL but I am glad they are so strong! Let us know if we can do anything. We will be up at Primary's on the 29th of this month, it is a Tuesday, to meet with the geneticist. I hope they will be able to tell us something new and informative about our family and these heart defects.
Shauntelle, you are an amazing mother! keep up the positive spirit!
you are in our prayers. I will be up @ PCMC Mon. April 7 with Mason. He is geeting tubes in his ears because of persistent ear infections (all my kids have gotten tubes !) and a sedated echo! Will you be there? Give Kaidence a hug from us! Love Summer (sumstrick@gmail.com)
My prayers are with you guys still. I hope something is figured out soon. I am so amazed at how strong you have been thru this whole thing, I look up to you and am so glad you are my cousin. I wish we were closer so we could bond again like the good old days when we were younger. I sent the DVD's today, sorry it took so long but when you get them you will understand why. Let me know if there is anything else we can do for you guys. Love Denita
Hi Shauntelle, there must be something in the air because Jared's white count is high today too! He and Kaidence just seem to like to be twins. We're going back up on Friday to recheck his CBC so we will see what happens then. I was hoping to run into you today but missed you. I hope that your family doesn't have a bad bug and that Kaidence will be able to fight it off. Good Luck!
Rebecca
I guess Kaidence just wants to keep the Dr.s on their toes. I hope and pray that they can get things regulated. You and Mike are wonderful. Heavenly Father knew that you could make this journey in life with all 3 of your special little spirits. We continue to pray for all of you that you will have the health and strength that you need. We love you and keep you in our prayers as well as these other sweet little ones. Love to you all, Aunt Deb
Shauntelle, I fixed the email on my profile so it should work now. Drop me a line and we can chat. I tried to reply to your comment but it didn't have an email attached.
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