KAIDENCE IS IN REJECTION!!!

So I am a little broken hearted to say that Kaidence is in rejection. In fact I think I am sick to my stomach a little. The hospital just called and seemed as surprised as we are to hear this news. The good news is that we will treat Kaidence on heavy steroids and meds at home and not the hospital. The bad news is that Kaidence will be defiantly off limits as we will now be very immunosuppressed once again. So we are back to no visitors while she is on all of these meds. I do have one small request for my boys sake. I do ask a favor that if everyone is healthy that you still involve my boys in things. I don't want them to feel the effects of Kaidence's condition with their social lives. I am not sure what to think and the thing that scares me most is that we had no symptoms. I worry that I will now forever be paranoid that we are in rejection and just not seeing the signs. However I must find a blessing in all things so here it goes: I feel blessed that Kaidence's body IS handling the rejection so well and not giving us any other problems and that we are in our HOME. Little kids can compensate very well.

So with that said I will try to explain the best I can how they determine rejection. They took 4 pieces of Kaidence's heart to biopsy. They test for different things but the main things they do is test at 1) a cellular level 2) a vascular level 3) they use an international number (I don't know much about this one). 4) look for AMR (antibody mediative reactions)
So on the first three they grade on a scale from 1-5. (1-2 = normal) (3-4=mild/moderate) (4-5=moderate/severe). Kaidence's results were 1)cellular =2. 2)vascular=3. 3)International=0.

The AMR test is either Positive or negative results. Last Biopsy at three months out Kaidence tested negative. Today she tested positive. This basically means according to how I was described, that Kaidence has these rejection antibodies against her heart in her muscle and blood stream.

WE are starting treatment tonight and like I said will have to stay away from everyone. I am sad but enjoyed the worry free time that we were blessed with while we could. This AMR is very treatable they say. It is just that we have to once again lower her immune system even more. The steroids are very hard on her body and make her cheeks chubby again and she will most likely not feel very well. It causes bad headaches, stomach problems and just makes her feel icky. Please pray for her to not feel awful. She is too little to have to feel this way. We still feel very blessed and continue to count our blessings during this little setback. Kaidence still looks great and clinically she is doing well also. WE may have to biopsy again soon. We will keep you posted.