First, I want to Thank everyone for once again praying for Little Kaidence and our family. Your prayers have been felt.
After thinking that we were losing Kaidence on Thursday, I have yet again had much time to ponder. I am so grateful to be where we were, when we were. I am so grateful to have the Dr. P there. I didn't realize until last night that they pulled him out of the ER when K had her episode. However, the moment he showed up I felt so much relief. I totally trust him and he knows Kaidence.
Mike and I were able to get some sleep last night, together on on our twin bed. Kaidence is looking better and this morning she was .......EXTUBATED!!!!!! She is still pretty drugged, but I can tell she is happier.
Her echo this morning showed that her heart is still very big and her valve is leaking a great deal. That however is to be expected. Our hope is that with time and treatment, it will resolve over the next few months. Her labs are looking better. She is still on insulin because high doses of steroids have thrown her blood sugar. She is still on IV meds to help her heart pump. I am happy with her progress, it will take baby steps but we are heading in the right direction now. Hopefully, her heart can make a full recovery.
We will be in the CICU for at least a week, possibly longer. Her next dialysis treatment for her blood will be tomorrow morning. We are praying that these dang antibodies will go away and that these treatments will help
Thank you again for everything. Our hearts are full once again.
10 comments:
So glad that things are looking better. Poor girl has just been through way too much, but she has amazing parents standing right beside her.
We have Kaidence in our thoughts and prayers constantly. It's different being at the cabin without her. The boys are keeping busy playing in the river and playing games. The boys message to KK is "We hope you get feeling better we love you". Our message to Kaidence is you continue to humble us and teach us. This is just another mountain for you to climb keep climbing and know that Heavenly Father loves you so much as does your Nanna and Pappa.
Love Nanna and Pappa Maddock
YOUR LOOKING A LOT BETTER K! WE ARE SO GLAD THINGS ARE LOOKING UP AND THAT HEAVENLY FATHER HAS (ONCE AGAIN) ANSWERED OUR PRAYERS! RY AND WES ARE VERY CONCERNED ABOUT YOU AND KEEP PRAYING THAT YOU WILL BE ABLE TO COME HOME SOON. THEY WANT SO BADLY TO SEE YOU AND BRING UP THE PICTURES THAT THEY HAVE MADE!
LOVE YOU ALL!
We have a fetal echo on Tuesday, would it be possible to stop by and say hi? I am glad to hear she is doing better, but that picture takes me back to our time in the PICU with you guys and I am so sorry. We love you guys and Kaidence, and your family will be in our prayers.
Heart Hugs,
Emily and Mike
Sheila let us know about Kaidence and we are certainly thinking of your family right now. We wish you the best and hope and pray
things continue to improve. We will be looking for all good news now. Love to you, Parker's Grandma.
We are praying, and I will be staying tuned for details.......
Holy crap.I just found out and I am praying praying so hard that she continues to do well. The moment we heard we knelt down and said a prayer for Kaidence. Please know you are in our thoughts and Ryan and I will be fasting tomorrow for you. We love you. Hang in there. Let me know if you need anything, help with the boys, a meal, anything. Love you.
This weekend we were all in Yellowstone. Memories of you, your family, green T-shirts and the Playmill warmed our hearts. We are all thinking of and praying for you as you face this challenge with Kaidence's special heart.
We love you all!
Corey, Michelle, Angie, Mari, Robbie and Rob
Glad things are looking better. You guys will be in our prayers.
what the heck?!! I leave the country for 2 weeks and look at the trouble you guys have gotten into!
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