Things I am noticing.....

So I figure that a quick update is better than no update. Two things that I have noticed over the past week are that Kaidence's appetite is blah to non-existent.  The girl is not eating, even the foods she would always ask for 2nds on.  Her weight I am sure is continuing to drop which then narrows her donor pool;(  I feel terrible because truth is that for so long she has been a great eater and I didn't have to worry any longer about what she ate.  The girl was always hungry.  To be honest she drove me crazy because she always wanted to eat.  So I finally taught her how to make her own ham and cheese sandwich.....her favorite. I haven't paid any attention for a while and I think this problem has been going on a little longer than I thought.  Once cardio let me know that her weight has been trending down, I have kept a watchful eye and seen a HUGE difference in her eating AND drinking.  My gut tells me that tube feeds are right around the corner.  I really don’t want to start that again.

The last thing that I have noticed is that Miss K doesn’t enjoy playing with friends like she did before.  She no longer wants to play, ride her bike, jump, play in her playhouse or do much of anything.  It broke my heart the other day when her two friends came over to play and she told me that she didn't want to play because she was tired and needed a nap.  So not a Kaidence thing to do.  My friend brought the same thing to my attention the other day when K was playing at her house with her little girl.  K told her she needed to go home and nap.  Let me remind you that Kaidence was my youngest child to stop naps!  Kaidence doesn't slow down!

So there you have it.  Nothing exciting going on but just the things that I need to have documented.  Please keep Miss K and her 2 heart friends who are waiting for hearts also in your prayers. Thanks friends for checking in......