Making Progress....

I have a bunch of pictures and videos to post but this place keeps me so busy...Kaidence has been very sleepy.  We were able to force her awake yesterday long enough to go on 2 walks.  That was an order from Dr. K! The crazy thing is that her chest doesn't hurt her (except when she coughs) but it's the Picc line in her leg.  It has made her ankle and foot swell.

Todays chest x ray looked a tiny bit better.  She still has a lot of extra fluid that she needs to get rid of and so today we will take more walks.  Her echo also looked better today and so they are decreasing her Milrinone!  She is starting IVIG (good antibodies) to help her fight off this Parainfluenza.  Overall, her cough is getting better. They seem pleased with how well she is doing.  The thing holding us back are her lungs. I must add that she is SO PINK!  Her cheeks are rosy, I cannot stop touching them because I think she must have a fever with cheeks like that.

I love seeing all the staff that stops by to see Miss K after they learned of her getting a new heart.  They are so excited for her.  I am so grateful that she is surrounded by those who both care for her and love her as well. To all of you that have dropped things off for us....THANK YOU!  You are so thoughtful!  Thank You for taking such wonderful care of us.  To my family and my hubby who are home packing up my house while I sit with K.....I couldn't do it without you.  They have been wonderful to care for my boys, house and the extra bonus of packing for a move!

To all of you who have followed this blog....we are grateful for your many prayers over the years, your kind comments and just knowing that you were here for us.  Some of you we have met but many we have not.  Thank you for putting your heart into my little girls journey.