Today Kaidence had her echo. Her EF (function) went from 9% to 15% and one other part of the echo looked slightly better as well. I know that Cardiology won't be as excited as I am and they will say that she still needs a heart and that is fine but they are also the ones that told me that her function would never get better. I even asked when she was first admitted this last time to PICU if it could make it make it back up to 15% which is what we took her home on after she was first diagnosed - they told me a firm NO. They said that it would never happen. So we have gone from 3%-15% which I think is great. At least it is a step in the right direction. I look at this as another miracle which is the same term that the Dr's said that it would take to get her function back to 15%. We have once again been blessed.
I am going home today and I am very excited to see Mike and my boys. Kaidence is doing well and sleeping a great deal today. The Dr's think that she looks good and they will continue to ween her from meds.
Homiecoming and trunk or treat
2 weeks ago
5 comments:
YES!!!
This is great news and a step in the right direction. We celebrate and are grateful for any sign of improvement. I'm grateful for this miracle.
Love - Mom
KAIDENCE YOU KEEP SUPRISING US ON A DAILY BASIS. WE ARE PROUD THAT YOU'VE BEEN PROVING TO EVERYONE THAT YOU'RE A FIGHTER. WE LOVE YA LITTLE LADY!
LOVE - MIKE, LYSE, AND RY RY
That is WONDERFUL to hear. Miracles do happen. We will continue to pray daily for Kaidence to go home to her wonderful parents, and cute and loving brothers.
Glad to hear this good news. Please know that we are checking your blog MULTIPLE times a day to stay updated on Kadience...Stay strong...
Way to go Kaidence. We knew you could do it. Inside that tiny little body is a gigantic spirit. And to see this much improvement is definitely a MIRACLE. In those low moments with My son pulling away from our family I finally surrendered things to the Lord. This is what I wrote. I learned that the Atonement is not just for our sins, but for many other things as well. When I gave by burden to the Lord I felt a great weight lift from my soul. I know that I have to continue to do the things that I can do, and the Lord will help with the rest. I'm glad to see that you have set up a trust fund for Kaidence. Love to you all, Aunt Deb
Surrender
Trust in the Lord in all that you do,
great things will happen in you’re life too.
Christ suffered for us all the good and the bad,
He knows us better than anyone has.
Do all that you can then surrender to him
Your burdens will be lifted from your spirit within.
Christ has suffered for all of our sins and even the burdens we keep tucked, deep down in.
Our Savior Jesus Christ has given us a gift,
It’s called the Atonement
it’s there for us, each day that we live.
So surrender to God
Feel the peace that starts to unfold.
You’ll find relief, comfort, and joy as you
cleanse the transgressions and sorrows from your soul.
Christ has told us to come unto me,
Take my yolk upon you and learn of me.
For the meek, and those who are lowly in heart
I have been by your side from the very start.
Debbie Mitchell 12-27-05
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