I have been meaning to update but my Internet on my laptop was not working and I just barely got Mike to look at it. Anyhow, Kaidence has been doing very well. In fact I think that she has handled this pneumonia just GREAT! I have been shocked, but trust my when I say that Cardiology has seemed even more shocked. I managed to keep Kaidence home the night with the 103.8 temp. I had her sleep in her diaper only with a blanket over her and then I put her on continuous G-tube feeds. I used some really cold cans of pediasure and then packed her feeding pump bags with ice packs so that it stayed cold all night. I really think that have the cold liquids running did the trick with keeping her fevers under 101 degrees. It seemed to work better then doing sponge baths (she hates those). Mike and I also took turns waking up every 1.5 hours to check her temp, just in case. Anyhow, that night was Kaidence's first dose of antibiotics and she has not had a fever since. In fact, starting the next morning she has wanted to be outside riding her bike. Cardiology called the next morning worried and I let them know that she was fever free and wanting to play. They seemed to feel much better about keeping her out of the hospital and off IV antibiotics at that point, but I am not sure they believed me 100%. They called the next day as well to check again (I think that they were all expecting her to be very sick). I had to give them the same news again, but they asked that I take her in that day to see her pediatrician and check her 02 sats. With her little mask on that she wears to the doctors office she was satting at 98 (AWESOME for a healthy person). We will go in tomorrow for follow up labs to see if her CRP has come down and to do another chest x-ray. I think that things will look much better. Kaidence has had more of a cough today than she has in days, but I think that is maybe because her lungs are finally cleaning themselves out and she can move all of that junk up and out. I am so grateful that this turned out how it did. We were surprised and quit frankly I initially thought that we were going to end up back in the PICU. Fortunately we have been able to stay home and life goes on.
6 hours ago