Thursday, February 19, 2009


I hope that everyone had a very Happy Valentine's Day. We had a lot of fun. The boys of course had a great time at their school parties. It was nice to go and help out for a change. However, I had to put a ban on candy Saturday night because the boys were flying off the walls. It was pretty bad so we had to do a little sugar detox.
Here are some cute Valentines Hair that I did for my niece and Kaidence. Gotta love hearts!!!

Kaidence's eating is not so great at the moment. I am once again tube feeding more and more. I gravity feed most everything but have used the pump at night like always. Kaidence is NOT tolerating night feeds at all. I have cleaned up A LOT of puke in the middle of the night this last week. So if we don't get all of Kaidence's feeds in before midnight, it won't be happening at all.

Kaidence's cardiology appointment was bumped up a week because next weeks schedule is insanely busy. Anyhow, all looks well. Kaidence's cardiologist was surprised with how great Kaidence looked. I also let her know that Early Intervention said that Kaidence is all caught up developmentally (except eating.) She said that it was absolutely amazing that she is all caught up considering how long she spent in the hospital waiting for a heart with her being so sick. She was very pleased with Kaidence's progress. Kaidence herself loved being at the hospital, of course. She followed all of the nurses around and just thought that it was the greatest. Also, Kaidence weighs a little over 25 pounds....WOW. We have been stuck in the 23lbs range forever. I was so surprised. I think the Duocal (extra calories) that I give her helps her weight to not drop so easily. It just seems more consistent now. I am taking in Kaidence to have a procedure done tomorrow to check her kidneys. I hope that all looks well.

Here is a picture taken today of Kaidence. "M" decided that Kaidence need to wear his soccer uniform (shin guards included). He dressed her himself. She is holding "C's" dog named "hamburger."

Kaidence's Birthday is coming up next Monday and she will be 2 YEARS OLD......CAN YOU BELIEVE THAT??????
For her Birthday this year we are asking that in honor of Kaidence and all of her heart buddies that you Please become an ORGAN DONOR if you are not already. Kaidence would not be here to celebrate her 2nd Birthday if it weren't for her Organ Donor. That little boy saved my daughters life.
What better Birthday wish could Kaidence have for all of her heart buddies than for them to have the same opportunity?
We have been blessed!


Heart Mommy said...

Oh my cute heart hair.... I love it... I wanna be you! great job!!!!

Em said...

Wow!!! Where does time fly? Mike saw Kaidence's picture on the PICU board and could not believe how big Kaidence is!!! We are so happy that things are going so well and just know how special your family will ALWAYS be to us!
Heart hugs,
Emily and Mike
P.S. The hair is ADORABLE!!!

Becca said...

It's so good to hear that Kaidence is doing so well! Jared's eating is still pathetic also. I think that it is going to be a really long process! I LOVE the hair! How in the world did you do that? I am not so skilled in the hair department. My daughter has a few hair styles that are repeated over and over again! I hope that the tests with her kidneys go well. Good luck!
Rebecca and Jared

Anonymous said...

I love that cute hair. I can't believe that Kaidence is going to be 2. What a milestone and incredible progress she has made. Maybe she will dive into her Birthday cake. I hope that her kidney test goes well. I was reading your blog at the beginning the other night. You and Mike and your family have been through so much. And you have touched so many lives in the process. I think that it's wonderful that you have became a voice for so many. I am a registered donor. I wonder if I could donate 80 pounds of fat, and they can have the rest when I die. If you find out about that kind program let me know. I hope that you are all staying well. Love to you all, Aunt Deb

Michelle said...

We check and read your blog daily. Just wanted you to know that we love you all and miss being just down the street. Kaidence and your whole family is always in our prayers.