Wednesday, May 27, 2009

"Childrens Miracle Network" telethon for Primary Childrens Hospital and a quick Kaidence update.


Yes, it is that time of year again. It is time for the annual "Children's Miracle Network". We have been excited to be a part of this for the last couple of years and hope that its success may bless the lives of others.

Kaidence's shorter video of her "Miracle Story" will supposedly be viewed as one of the opening stories for the telethon as part of the national broadcast and also throughout the telethon. So look for her. I have also been told that John Schneider and other celebrities talk about Kaidence’s story! It should be fun and intersting to see.
But most importantly, this is a great time to contribute to the only children's hospital in our area. Primary Children's Medical Center truly is a gem in the community. We are so blessed to have such an amazing place to care for our sick children. This hospital is in our community caring for our children, grandchildren, niece's , nephews, neighbors as well as some adult patients that received specialized care from the hospital as children.From the half of year that we spent living in the hospital and the time that we spend there now for appointments, we have seen how our wonderful community plays such an important role in the success of the hospital as well as bringing smiles to the children's faces. I hope that you will take the time to give a little contribution if possible. Mike and I don't have much to give but we will give what we can and if others do the same it will go a long way and bless the lives of others. For those that want to donate in honor of a child that has been touched in some way by this amazing childrens hospital, you can do that as well.

I copied this info from Paul's blog (hope it is ok Paul). But he had all the info already.

Miracles happen every day at Primary Children's Medical Center and once a year the Utah community and KSL Channel 5 come together to celebrate those miracles during the KSL/Primary Children's Miracle Network Telethon.
The 27th annual Primary Children's Telethon begins Saturday, May 30 at 6:30 p.m. and continues through Sunday, May 31 at 5:00 p.m. on KSL Channel 5.
Primary Children's is the only full-service pediatric hospital in the Intermountain West equipped to care for the total child. The hospital provides specialized care to each child, regardless of ability to pay.
Last year, Primary Children's expended more than $13.4 million to cover more than 11,337 charity-care patient visits.Contributions can be made during the Telethon or by mail to Primary Children's Medical Center, P.O. Box 58249, Salt Lake City, UT, 84158, or online at www.primarychildrens.org.
KAIDENCE UPDATE: Well, Kaidence is once again sporting more fevers. What is it about this time of year? She has been up for the last couple of nights with low grade fevers. She acts ok during the day (no vomiting or anything). She will go outside and run around but these fevers seem to flare up at night. Last night she set an all time record for the highest fever that she has ever had 105 degrees. She had jumped from 102.7 to 104.4 in about 5 minutes and then within a couple more minutes hit 105. I was trying to get ready to take her in to the ER when the cool wash clothes and Tylenol started kicking in. I was so relieved and honestly surprised that this was actually working because it usually does not. I just kept praying that she would not start to go into seizures before I could get her temp down, she was just so shaky. We have blood test (cultures) pending and other than that we have no clue what is going on (chest x-rays look good). Also we keep losing weight. OK, not WE (i have the opposite problem) but I think you all knew what I meant. Kaidence is back down around 23 lbs 8 oz from the 25 lbs 2 oz. She is still getting the same amount of calories but for some reason is losing the weight instead of gaining it.
Anyhow, that is it for us. Please remember the telethon this weekend and thanks for all of your love, prayers and concern.

7 comments:

The G Fam said...

I hope they get the fevers figured out! I personally wish I cold shed weight and give it to Kaidence! Wouldn't that be nice?!

Kerry and Chris said...

I've read your blog for months and was pleasantly suprised to watch Kaidences story Sunday morning. You are so strong and loving in this tough situation. Hope the fevers go far, far away!

Tiffany Profsky said...

hey Stephensons,
I am not good at keeping up with people these days but I think of you guys all the time. I am glad not to have seen you in PICU and hope it stays that way!
Hope all is well
Love always,
Tiffany (your fave nurse)

Debbie said...

I'm sorry that I missed the Telethon.
I really wanted to volunteer to answer the phones and help out. One of my clients seen the story on Kaidence and was touched by it. I am glad that she is doing well you are able to avoid the Hospital trips. I miss you all and hope that things are going well for the rest of you. I hope and pray that Paul will get his gift soon. Love to you all, Aunt Deb

Tiffany Profsky said...

so the blog is for a class of mine, so the posting you saw was in response to an assignment. I am not sure if I will keep updating it after the class is over. it might be kinda fun.
hope all is well,
love tiff
ps-you guys were a great family to take care of in the PICU.

Four the Boys...Tami said...

I cant believe that is the same little girl I met in the hospital! WOW SHE LOOKS SO GREAT! It is nice to see her so beautiful and full of life!
Congrats
Hope the ailments get better soon so you can have a great summer!
Take Care!
Tami
Thatchers mom

Denise said...

Dad and I happened to catch Kaidence's video Sunday morning. We feel so blessed that this hospital is so close by. They have given Kaidence great care.

Love Mom and Dad