Monday, June 28, 2010

NOT WHAT WE THOUGHT!

As you all know, Miss K does not follow the rules.......she makes her own. A little over an hour into surgery the doc came out and explained that he no longer thinks that K's vocal chords are paralyzed. He seemed very surprised. However he did find some weird swelling and floppy things in her throat consistent with acid reflux. The floppy things can be surgically removed, however not tonight. We need to do some investigating into whether this is really the case. Removing the 'floppy things' will help improve her sleep apnea and could possibly help her sleep apnea. He however does NOT seem to think that it will help her choking issues and her very soft voice. Bummer! That part has me concerned.

The plan, we will go home tonight once the anesthesia wear off and then meet with the surgeon and her GI doctor to get a plan in place. Post transplant she use to vomit 8-10 times daily, but has not for a long time. We had to take her off reflux meds because it caused her white count to drop dangerously low. We haven't seen any problems with reflux, but I guess you never know.

I am tired, smell like pee and need to go be with my baby girl. I wonder if she will be shocked by how easy her surgery was. Do you think she will be sad that she still doesn't have her Mermaid voice?

4 comments:

Emily@Little Forever Family said...

That is so strange. Glad to hear you guys get to go home. That's definitely some good news. Not such good news: smelling like pee. That is just one of those I just do not like to smell like or have on me. ;)

ParkerMama said...

What a story of hope and courage yours is! Glad you get to come home.

Tammy and Parker
www.prayingforparker.com
www.5minutesforspecialneeds.com
@ParkerMama on Twitter

Mike and Rebecca said...

Oh Kaidence. You do like to do things in your own way. Glade your home though. I love your cute little family.

Rebecca patton
IHH

carolyn q said...

WOW, so interesting that it wasn't what was originally thought. I hope your were able to all get some good sleep lastnight.
(HUGS)
Carolyn