Wednesday, October 5, 2011

Monday's Appointment

Monday's cardio clinic was fine. Her echo still looks the same and so that its good news for now. Things are all lined up and ready to go to re-list her for a new heart. We should be able to get her listed within 24 hours of those changes. Cardio will move quickly! Until then we just watch, wait and pray that nothing happens during the time between. Her next biopsy will be at the end of this month. Did you realize that it was 4 years ago this month that Kaidence was listed for her first heart transplant? October 16th to be exact. It seems all to familiar.

We chatted with Rainbow Kids about paper work that needs to be drawn up for Kaidence if something were to happen to her. It will entail 'what measures' we would want taken in the case of an emergency. We don't have to use the paperwork but IF we needed or felt that it was time to stop and let her go.....we would have the paperwork necessary to do so. Such yucky stuff to think about. Hoping to not ever use it.

Kaidence is doing great. She is feeling well and wants to go and play. This house arrest gets old pretty darn fast for a 4 year old but she hardly ever complains. We are praying that this stomach bug that has been gracing our home for the last week will somehow skip over Kaidence and her weakened immune system. Prayers! All the boys and Mike have had it already. McCaden was recruited to it last night. We came home from the temple to a puking child. Oh how I pray that Miss K can avoid it!

Friday we were able to get family pictures done. That feels like a big accomplishment. Carden was a terror through it and Mike had the flu.....but they are done! We stayed home for conference weekend and were able to enjoy all the sessions. I cannot wait to go back and read some of those talks.

Kaidence is so excited for the cold snowy weather, crazy girl. She has been begging us to have a fire in the fireplace. She keeps telling us we need to because it's 'so chilly.' Tonight, we will be having a cozy fire with hot coco and maybe some s'mores. We are trying to settle into the normal routine around here again and I think that we are doing pretty well with it. Better than I thought. I am able to let her go and do things on her own around the house and not hover over her 'in case' something happens. That has been a HUGE blessing. We know that whatever happens, things in time will be ok for us. We know that no matter what, Kaidence will be great. I have put everything in Heavenly Fathers hands and turned it all over to Him. We will do what we can for Kaidence but in the end....He is in charge. We will continue to wait on the Lord for guidance and keep looking up!

Thank You to my dear friends and family that are helping out with my kiddos. It's such a blessing to not have to haul Carden to cardiology (that just amplifies the stress). For those that have brought in wonderful meals and freezer meals.....Thank You. They are a blessing to us. After a long day, it's so nice to partake of something that was made for you out of love. We don't feel alone and forgotten.

Thank You all for your prayers. I informed Kaidence's doctor the other day that for just as many prayers that are going out for Kaidence, the same are going out for them. She appreciated that. Your prayers mean the world to us. I have faith in your prayers!

2 comments:

Angee and Thom said...

We are including Kadience, you, your family and the Drs. in every prayer. You are an inspiration to me. You go forth with such faith. I only hope if Severin's little heart tires, I can go about decision making with the same measure of faith as you are.
Loves!

kewiesterrock said...

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appointment setting