Yes.....we are still here and Kaidence has been home for awhile. She is doing Fabulous......We have been busy with the move and new heart appt. I promise to get a post with pics of her transplant soon! Know that things have been better than ever expected and I will post soon. Thanks for checking in!!!!
Danny's Birthday
4 weeks ago
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9 comments:
Wonderful wonderful news!!!!! Thanks for the quick but great update!!!
Awesome!
Glad to hear that she is doing so well and recovering beautifully.
- Isabelle
Thank you so much for the update, I am so glad that things are going so well Kaidence and your family. I am a prayer warrior and ever since I first heard of Kaidence's heart issues I have prayed for her and your family. I too like some others have expressed became concerned and started to fear for you all, but I am so relieved to see and read that she is progressing so well and is home even. What wonderful news! Praise Be to God for all the blessings He has given you all. YEAH 4 KAIDENCE!!!
Thank you so much for the update, I am so glad that things are going so well Kaidence and your family. I am a prayer warrior and ever since I first heard of Kaidence's heart issues I have prayed for her and your family. I too like some others have expressed became concerned and started to fear for you all, but I am so relieved to see and read that she is progressing so well and is home even. What wonderful news! Praise Be to God for all the blessings He has given you all. YEAH 4 KAIDENCE!!!
Congratulations! We are so excited for Kaidence. Yahoo!
So, so glad all is going well for your fam and Kaidence! I think I heard you guys in the hospital last week, were you there? We were getting on the elevator near the lab and I thought I heard you say, "Kaidence it's our turn". I tried to look back but we were in a super hurry and the elevator was closing. I guess it could have been another Kaidence, but if it was you guys I'm bummed we didn't get a chance to catch up in person. I think about Kaidence and your family a lot and am thankful for your inspiring examples. :)
I just saw a video of your familly on youtube (CMNHospitals) and your story is so incredibly similar to ours. Our daughter Lydia had resetrictive cardiomyopathy (but also strange and different than anyone had ever seen, they called her unique) and at the age of 5 she was put on the Berlin heart. She did very poorly on the pump and after two weeks she had a major stroke that she is still recovering from. Unknown to everyone she also had a massive infection brewing in her cannulas. On December 10th 2010, when Lydia was 5 1/2, we got the call for a heart. She had been having fevers that week and the whole ID team came in and were scratching their heads not knowing what was going on. I believe God was blinding them to the huge infection or she would never have been approved for transplant. When they went in to remove her heart they found puss all over her abdominal cavity and in her cannulas. They drained a full liter of puss from her... When they were removing the Berlin they saw that the stitches that were holding the cannulas to her heart had been eaten away by infection and were about to come loose. She would have died in minutes. Her heart came to her in the nick of time. Today she is 7 years old and as healthy as a heart transplant patient can hope to be. She still has little use of her right arm but she's walking and talking and going to school. She is a living, breathing miracle. We got our Christmas miracle and I'm so happy you got one too. God bless!
I just saw a video of your familly on youtube (CMNHospitals) and your story is so incredibly similar to ours. Our daughter Lydia had resetrictive cardiomyopathy (but also strange and different than anyone had ever seen, they called her unique) and at the age of 5 she was put on the Berlin heart. She did very poorly on the pump and after two weeks she had a major stroke that she is still recovering from. Unknown to everyone she also had a massive infection brewing in her cannulas. On December 10th 2010, when Lydia was 5 1/2, we got the call for a heart. She had been having fevers that week and the whole ID team came in and were scratching their heads not knowing what was going on. I believe God was blinding them to the huge infection or she would never have been approved for transplant. When they went in to remove her heart they found puss all over her abdominal cavity and in her cannulas. They drained a full liter of puss from her... When they were removing the Berlin they saw that the stitches that were holding the cannulas to her heart had been eaten away by infection and were about to come loose. She would have died in minutes. Her heart came to her in the nick of time. Today she is 7 years old and as healthy as a heart transplant patient can hope to be. She still has little use of her right arm but she's walking and talking and going to school. She is a living, breathing miracle. We got our Christmas miracle and I'm so happy you got one too. God bless!
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