Thursday, May 1, 2008

WE ARE FREE AT LAST!!!!!


So today was Cardiology and actually it was a good appointment. Kaidence is doing well. Her white count is up again, this time on her own and so we increased her cellcept dose. They also took her off the Nystatin (yeah!)


AND..............they told us that we could start taking Kaidence out. We did not expect to hear this for at least another 1 1/2 months. They feel that Kaidence is doing well. We are so excited and terrified as well. We still have to be smart about it and stay away from a lot of little kids and anybody that is sick. So if your are sick please let us know so that we can stay away until you are better. That would help us out alot and help us feel more comfortable as we do start taking Kaidence out and about. We can't sit and pass Kaidence around which will be hard because a lot of people will want to hold her, but I guess they'll just have to love her from a distance. I hope they will be understanding. To celebrate our exciting news we went out to eat as a family. The last time we went out to eat as a family (not counting the hospitals "Rainbow Cafe") was July in McCall. It was so much fun. My parents, Shalyse and her family all went to Chili's. Mike's parents were in Provo visiting his grandma that is having some health problems or else I am sure they would have come with. It was scary taking her out into the world knowing that she is immunosuppressed but it felt so nice to do something normal. I bought a portable fold up high chair to keep in the car so we don't have to use the public restraunt high chairs and let's just say that I Lysoled the heck out of the table at Chili's tonight. We are so grateful that we are at this point. We know that we always have the chance of rejection and starting house arrest all over again, but right now we are embracing the moment. We have been on house/hospital arrest since last July. We will SLOWLY introduce her back into the world of germs and hopefully she won't get sick. It scares me because there are some immunizations that Kaidence can't get because it is a live virus, like the chicken pox vaccine and some others. We will hope and pray that Kaidence can live a normal, happy life and be able to do it without getting sick all of the time. Colds to you and I may not mean anything and so we would still go places and continue on with life but if kaidence caught that same cold, it may cause many problems for her. Kaidence loved her outing and she also LOVED her lemon(notice pictures to the right). She sat and chewed on two lemons all night. I took one of them away and Kaidence defiantly did not approve. Earlier today she also ate a little baby food (way to go!). We are so grateful for this day.

I have been thinking the last week about how so many of you have blessed our lives through your kindness. Thank You for your love and prayers. You helped us make our last year easier and many of you made our Christmas the most memorable ever.

Sorry this post is so unorganized and jumps around but I have a terrible headache and can't think but was too excited. I had to share our big news.

10 comments:

paula said...

Wow! That is awesome Shauntelle. I loved seeing little Kaidence up at the school on Monday. You guys continue to be in our prayers. We love you all so much.

-Paula

carolyn q said...

WAHOO. . .I imagine it felt like Heaven to be able to get out with family at a real place. I am so glad that you can start taking her out and I can only imagine how nervous you are about it at the same time. What a great idea about using your own portable high chair. . .those restuarant high chairs are so icky!
I check up on your blog all the time and think of what an amazing example you have been to me. I am so blessed that I have been given this wonderful opportunity to get to know you!
Heart Hugs,
Carolyn

Debbie said...

Ya hoo! I bet it felt wonderful to get out and go as a family. I'm sure that it was a new experience for Kaidence. And the boys probably loved getting family time outside the house. I am so glad that her Dr. visit went so well. I think that you are on an upward climb. Kaidence will take off so fast you won't know what to do. Love and prayers, Aunt Deb

The Wiley Family said...

I am so happy for you guys. It's another step to being normal again. (A different normal.) She is such a cutie!
Ashley

Crystal said...

What wonderful news!! And she does look so good in the lemon picture!

I totally understand how scary it is venturing out after being tucked away for so long. I didn't understand just how much I really did miss it until we all went to church for the first time. So I am just thrilled thrilled thrilled for you guys. And that Kaidence is doing so well. I feel extra close to her and your story since there are not many other people that I know who have been through what we have been through.

So thank you for making my day!!

Denita Skousen said...

This is so awesome. I am so glad you guys got to go out and have a good time with the family. We are looking forward to June and hope everyone is healthy so we can spend a little time together. Denita

Gourley Family said...

That is so exciting! I am so happy that you guys were finally able to get out of the house/hospital to do something together as a family. Now that it is getting warm, hopefully you will be able to make more and more memories and be able to slowly get back to somewhat of a normalcy!
Hugs,
Emily and Mike

Megan said...

I am so excited for you guys!! That is awesome you can start going out. I know it will be little outings at first, but hopefully by this summer Kaidence will be able to go out a lot more!!

Yeah for her white count looking so good!! (:

Debbie said...

By the way tell Mike he looks great. I am so proud of him. Aunt Deb

Ashton (aka ashy) said...

I’ve been busy and out of the loop for a bit and was just checking up on Kaidence. I’m so happy for you guys! I understand being worried about the germs. We didn't take Ashton to church for a long time because we were worried that everyone would want to hold him. We went to sacrament and ducked out the door after the closing prayer:-)
Nathan