Friday, November 7, 2008


(I wasn't kidding about her loving the hospital. Look how happy she is in her ugly hospital PJ's)

First let me say Happy "Berlin Heart" Birthday. Today is PCMC's "VAD program's" 1st Birthday!!! A year ago today we were surrounded by doctors 24/7 (many, many, many doctors). Sorry for not posting sooner. I did not have my laptop with me and the hospital computers are very slow sometimes. Kaidence loved getting to ride once again in a hospital crib and I am not kidding about that. The second she saw her crib she was as happy as could be and they pushed her down the halls as she waved at everyone she passed and this was AFTER she had been given some Versed to make her drowsy, haha! She was so happy to be with her friends in her surrounding that Mike and I handed her over to the Cath lab people and she went with them and waved goodbye to us without a fight. At least she wasn't scared. Her procedure took about 2.5 hours, a little longer than the others so I was getting a little nervous but she did great. Her numbers all looked good and her echo after looked like they hadn't damaged anything this last time so that is great news. They took four pieces of her heart to check for rejection and a lot of blood. We will not know the results of the heart tissue until tomorrow. However, from some of her numbers they think that all is well. For those of you that have followed my blog from the beginning Will remember me talking about a BNP number. With Kaidence's sick heart it was extremely high, I think in the thousands was what her doctor said. The higher the number the worse the heart function, that is basically how they put it. For transplant patients they like the number below 100 but say they rarely see it on a transplant patient below 200. Well Kaidence's BNP was 43!!!!! Awesome news and the doctor seemed very happy and reassured about that.

(Kaidence coming out of surgery, she has a sore throat from be intubated so the sippy is just for looks. No drinking going on here.)

After the procedure the nurses just kept commenting on how great Kaidence looked and how good she was being. The other kids in the beds around us were all SCREAMING. Kaidence just laid there, looked around and listened to them like "this is nothing." Seriously, she did not cry once. She had to keep her leg flat and straight for 4 hours and when she would try to sit up I would tell her to lay back down and she would. She was a very good girl today and on her best behavior. Thank You all for your prayers and thank you to those that fasted with us. We are grateful for our blessings. As I looked at pictures of Kaidence's heart today I gave thanks and was once again amazed at the thought that someone gave us the heart of their cherished child so that they could save mine. I pray for that family everyday and hope that they will feel peace and come to know of the deepest gratitude that we have for them and their little boy.

(Kaidence getting ready to leave the hospital after her Cath lab.....See Ya next year and hopefully no sooner)

I will post again tomorrow after the results.


Denise said...

Kaidence -we're so proud of you!!! You're such a brave little girl. We know you'll continue to do well, you're a happy little girl with a strong will.

Love Nanna and Pappa

The Fam said...

Wow! Kaidence looks like a little girl now not a baby! I can't believe it. I hope things continue to go well.