Tuesday, November 24, 2009


Well, I am posting this from the "house upon the hill". Kaidence has been sick since Saturday with fevers, headache, cough and vomiting. I was told that we would not worry too much since she already had swine flu and should not get it again, BUT surprise She has H1N1 AGAIN and Pneumonia. The VRP panel the we had done on Sunday night came back negative for the flu, but then as I was siting in the ER today they informed me that it had been sent away and came back positive.

So kaidence's White count is 22 (not good for the immunosuppressed). Also her kidney numbers were a mess, we are hoping only because of dehydration. Her Prograf level keeps increasing even though we are trying to decrease it (it always increases when kaidence gets sick). She is almost 2 years post transplant and so they like her levels between 5 and 8. Today they were 18. This can also add to the nausea and headaches. I haven't slept since Thursday night and am feeling it a little tonight. Last night was the roughest, I think I worried and prayed for a wet diaper all night. The moment Kaidence would get 10cc's in her tummy, it was back up within a minute. I called cardiology this morning at 5 AM and left a message for the transplant coordinator to call me first thing. I wanted to bring her in for fluids and labs. I am so glad that I did.

We met with a doctor from 'Infectious Disease' that knows Kaidence all to well. He explained that when a immunosuppressed person gets H1N1 they get the initial virus for about 3 days and then it quickly clears, which Kaidence's did. They do well for a awhile and then 2-4 weeks after the initial infection they get sick again. This time usually with a bacteria infection like pneumonia as a secondary infection in addition to the H1N1 symptoms again. They aren't sure if when they get the second round of the H1N1 if the virus is alive or dead. The test only shows that it is positive for the H1N1 DNA. Reports seem to show that those who are immunosuppressed can shed the virus up to 21 days. That is a couple of weeks longer than those with a healthy immune system. We got a good laugh, because for once Kaidence actually did something that followed what they call "a text book case". She is usually writing her own book.

Anyhow, it looks as though I may get to partake of yet another lovely Thanksgiving Dinner here at the hospital. But hey, the Rainbow Cafe throws in free dessert and drink as and added bonus for Thanksgiving.

Tomorrow we will take more labs and hope that her kidney function is recovering and that she can keep things down. She is still very dehydrated this evening. They currently started Tamiflu again as well as two antibiotics for her pneumonia in her left lung.

We are heading to bed and praying that tomorrow brings much improvement.


Becca said...

So sorry to hear about your newest adventure. Poor Kaidence and poor Mom! Hopefully things will start looking up soon. We'll be praying for you!

Traci said...

Darn!! I hope she get's feeling better soon, and that you get some sleep.

Unknown said...

Man Shauny! We will keep little girl and of course her family in our prayers. We love you guys! Please let us know if there is anything we can do to help.

Treasure Hunter said...

We are so sorry! We will be praying for little Miss K. She is tough! We love you guys.
Will and Carol

Little Bear and Peanut said...

We are praying or Kaidence and your family. Hang in there.



Allison said...

Oh boy...you guys are in desperate need of a break! It sure would have been nice for someone to warn you about the "textbook" H1N1 return even if Kaidence never plays by the book! We will keep the prayers heading your direction and hope that the Rainbow Cafe can do justice to a delicious turkey dinner for the whole family! :( Hang in there!

Melissa said...

ugh, I am so sorry. Like you haven't been through enough already. I hope things clear up soon!

Family Scads said...

Darn it! I guess that it would not be the holiday's of we do not at least spend one of them in the hospital, right? I'm so sorry for all of you. Beck has been on Bactrum for 8 months to help prevent bacterial pneumonia. He is a huge risk right now because of his lack of everything. I wonder if they will do that for you now.

Lots of prayers for all of you!

Alayna Williamson said...

I still check up on you all the time! I'm so sorry to hear that K is sick. We will be parying for her and for you to have a Happy Thanksgiving!

- Alayna Williamson

The Boys Rule said...

So very sorry Shauntelle. We will be praying extra hard for you yet again. Let me know if you need anything. Love ya.