Tuesday, June 28, 2011

DONE!!!



DONE!!!!!! Two of the docs came out and gave report. Kaidence did great. We are still waiting to see her. GI's report was that she she does have irritation. They won't know the severity until we do the 24 hour study. The nasal tube was placed for that in the OR. It has a thing attached and I have to push different buttons every time she sits up, lays down, eats, stops eating etc. I may have a busy night! They will have biopsy results on Friday. Everything else with her stomach and intestine look good.



ENT Report- It turns out that the right vocal chord that we had always assumed to be the problem is not as bad as the left vocal chord. Kaidence's left vocal chord is paralyzed. This took place during her heart transplant. There is a nerve that goes around the heart and wraps around the Aorta. During transplant it was cut or damaged. Therefore, the vocal chord was paralyzed. He injected some plumping stuff into the vocal chord in hopes that it will bulk it up and give her voice some volume. It will also make her cough stronger to help protect her airway. This plumping stuff will wear off over time. If it works...we will do another procedure and thread a new nerve into the left vocal chord that is paralyzed. The right vocal chord has had some damage too it as well, but still is working....not perfectly, but working. He also took the extra tissue away from the left side of the airway.



Plan is to watch her for the next 24 hours. She will need some breathing treatments to help with the airway swelling. I am so glad they are not sending us home tonight. I would be a mess with worry. Mike just went back to see her. Here are some pics from earlier today. Thanks for your prayers. I will try to blog later but I may have my hands full.





5 comments:

THE BENNION BUNCH said...

YEA KK! WE CAN'T WAIT TO HEAR YOUR BEAUTIFUL MERMAID VOICE....KEEP BEING BRAVE, WE ARE PROUD OF YOU. RY RY CAN'T WAIT TO COME UP AND SEE YOU. ENJOY YOUR "ROOM SERVICE" AND PAINTING PIGGIES WITH YOUR MOMMY WHILE IT LASTS. YOU WILL BE HOME CLEANING YOUR ROOM AND DOING JOBS BEFORE YOU KNOW IT! LOVE YOU LOTS!

Britt said...

We loved seeing you today!!! I'm so glad we could hook up, even if it was only for a minute. Enjoy your girl's night, we might have to come visit. It's a relief to hear that everything went okay....we are so blessed to have met you, I truly think it was meant to be.

Michelle and Abby

Clemments Family said...

Sweet Kaidence, she is a doll! She inspires me so much, what a fighter she is and you are the strongest person I know. Prayers still coming your way.

Summer said...

So glad all went well. Have fun tonight with all those buttons.....you may need a vacation after this vacation to the hotel on the hill!! Mason and I send love to you both :)

ang said...

So glad she is doing so well! They can really thread a new nerve into the vocal cord that is paralyzed?! Isn't it amazing how the Lord inspires doctors to do such miraculous things to help our little ones. I pray you guys have a quiet and restful night and that the biopsy comes back looking perfect! Take care and keep posting when you can :)