Heart Failure?

Happy Friday the 13th (for the last few hours)! Wow, Kaidence has been listed for 260 days!!!!

I debated over posting because I want to post pictures of all the things that Kaidence has been doing to keep busy and all her visitors, but I am too tired tonight.  So I will divide and conquer (I hope).  Tonight I will update with whats going on and tomorrow will be a post of pics!

So today's plan was to go home....obviously, we didn't.  Her chest xray showed fluid still in her lungs but nothing too bad.  As far as the pneumonia, the docs feel they have good enough control over it to send her home.  That was the plan.  However, when her cardio saw her this morning she saw and heard some things that concerned her in regards to Kaidences heart.  She heard a gallop in her heart, her liver is lower, her labs look a little screwy still and K's belly is distended with fluid (heart failure).  The girl no longer has a belly button!  Also, she is not really eating or drinking much if at all.  All these all possible signs of increased heart failure.  K had an echo today and that still looked the same but Dr E still feels that something is off.  I am so glad she listens to her intuition. She is concerned that the pneumonia has pushed her over the edge and into additional heart failure. She wants to keep an eye on her.  If things persist we may need to put her on IV Milrinone to help her heart function better.  That would definitely be a signal if a turning point and I am just praying that someone will say 'yes' soon, before it gets to that point again.

Kaidence has been started on tube feeds again at nights but will likely go to bolus feeds during the day.  They have increased her Lasix (diuretic) and therefore she is up all night peeing.  It;s really hard to unhook her and hook her back up to everything multiple times a night when you are half asleep.  She is still requiring some O2 at night and we are hoping to not need it tonight.  We will see.

We have had great visits from family and friends.  Mike even brought up K's little doggies because she has missed them so much.  She was so happy to see them.  K's buddy Monica came up yesterday and today.  Her cousins and grandparents have been by as well. She keeps pretty busy with Mr Matthew and so do Chrissy and I.  I think those two wore each other out yesterday because today they were a little more mellow.  They did get their bedtime stories together tonight.

There you have it!  Our main concern is no longer the pneumonia but the likely possibility that she is starting into more heart failure. I will update with any news.  Thank You to my sister, mom and Mike's mom for taking the kiddo so Mike could make it to work some of the days this week. Thanks for the prayers for my sweet girl.  To our wonderful ward....Thank You for all the wonderful dinners you have made for Mike and the boys this week. Love and Hugs to you all.