Wednesday, February 6, 2008


Yesterday was about like the day before. CRAZY!!! However, today was better. I think that after two days of constant worry and phone calls trying to figure out Kaidence's medications that it is all worked out the best it can be. I also gave up hope for Medicade. We would be severly penalized if we were to take out our retirement. Not smart for our situation. Mike works hard for our family and our future. It would be nuts for us to give up that security for the next 20 years. We will just hope and pray that whatever SSI gives us is enough to lift the burden of part of the medication co-pay each month. I know that somehow it will all work out.

Kaidence got caught up on most of her immunizations and she also had her synergyst shot today (protects against RSV). She can never have any live vaccinations like the chicken pox with her immune system. Her pediatric office and doctor at have been awesome to come to the house to do her check-ups and shots. This will help out a lot when it comes to keeping Kaidence healthy. We are so grateful for them and we feel very blessed to have a wonderful doctor that we can trust to care for our children. She after all was the one that found Kaidence's heart condition in the first place. We are having McCaden tested for influenze. Kaidence's eating has greatly improved this last week. She is know have small bolus feeds to her stomach as well as taking food by mouth. I thickened her formula today and put it in a bottle with a hole cut out of the nipple. She is still leaning how to suck but I think she is starting to get the hang of it. She took 2 oz of formula. It took a little while for the first ounce but the second went fast. She loves her bottle now and I think she may remember it a little. Early Intervention came out today and evaluated her. She varies anywhere between the levels of a 4 month old and a 9 month old. Makes sense though when thinking of how long she was sick. We would have been so much further behind if she couldn't get the "Berlin Heart" that is if she even survived the wait. She is currently jumping in her Jumperoo. The boys are runny around screaming and I am trying to keep my sanity and ignore the terrible sore throat that I have started to get. Waiting for daddy to come home. All of you mom's know what I am talking about.


Em said...

My heart goes out to you! I am glad to hear that Kaidence is doing so well, but am sad to hear about the many struggles with copays and all that not-so-fun stuff. Your family will continue to be in our prayers! Kaidence has so many angel buddies looking out for her, and watching over your family too!

carolyn q said...

We also had to make sure that Hope did not get live vaccinations since she did not have a spleen.
I am glad that you have such trusted medical care for you kids and what an amazing blessing that they come to your home. WOW!!!
I am sorry you are all feeling terrible. I hope it passes by quickly and you are all on the road to healthier times.
Carolyn Quigley