SUPER DUPER CRAZINESS!!!!!

Disclaimer: My spell check is not working so beware of typos, but no need to make mention!
Well, we just got home from the hospital. We have been their since 8:45 am. I am exhausted, starting to feel a little sick and super grumpy. I don't want to say that today was a horrible day because horrible days are the days that one gets terrible news about a loved one. I have a new perspective on things and I do try to remember that. However, I can use the word "frusterating." It started off by IV team never coming to draw Kaidence's labs after 5 vocera pages and an overhead page. Her blood draws are timed and so when they still hadn't come by 11:00 and I was already 3 hours late for her cyclosporin dose we gave up. No lab test results today. Then when I called to find out where our mail order medications were that Kaidence is out of, I was told they weren't shipping them until friday. So I had to get 10 day supplies and pay another darn co-pay because someone else messed up. They also told me my co-pay for Prevacid was $3,000.00. Obviously, not right. Then I got a phone call from Mike telling me that Medicade called and that we have been denied because we have too many assets. They want Mike and I to take out all of our retirement. We don't have that much to begin with. We can only have $3,000.00 to our name in combined retirment and bank accounts. Here is what is crazy, they don't care how it is spent they just don't want us to have it. So they would rather have us with no savings for the future. We need a retirement because I don't trust our government to take care of me when I am older. How can that happen when they tell us all to quit our jobs? No employment, no taxes, no money.It would be so much easier to just have Mike quit his job, but that's not happening from us.
I am trying to keep things in perspective today because Kaidnece's surgery went well. She did great. We are slowly coming off some of her medications and possibly her oxygen in about 2 weeks. We are also pulling up her feeding tube to her tummy tomorrow if she is feeling well. Everybody was so excited to see Kaidence at the hospital. I must say that it was nice to only have a 30 minute wait in the OR waiting room instead of a days wait of long tense hours. We are so grateful for the many ways that we have been blessed and all of the other mumbo jumbo is just me letting off some steam, so sorry. We know that life could be some much worse and that this is nothing compared to what could be. I can't let myself lose sight of that. We have our miracle, how could I ever have the right complain after that?