Monday, February 4, 2008


Disclaimer: My spell check is not working so beware of typos, but no need to make mention!
Well, we just got home from the hospital. We have been their since 8:45 am. I am exhausted, starting to feel a little sick and super grumpy. I don't want to say that today was a horrible day because horrible days are the days that one gets terrible news about a loved one. I have a new perspective on things and I do try to remember that. However, I can use the word "frusterating." It started off by IV team never coming to draw Kaidence's labs after 5 vocera pages and an overhead page. Her blood draws are timed and so when they still hadn't come by 11:00 and I was already 3 hours late for her cyclosporin dose we gave up. No lab test results today. Then when I called to find out where our mail order medications were that Kaidence is out of, I was told they weren't shipping them until friday. So I had to get 10 day supplies and pay another darn co-pay because someone else messed up. They also told me my co-pay for Prevacid was $3,000.00. Obviously, not right. Then I got a phone call from Mike telling me that Medicade called and that we have been denied because we have too many assets. They want Mike and I to take out all of our retirement. We don't have that much to begin with. We can only have $3,000.00 to our name in combined retirment and bank accounts. Here is what is crazy, they don't care how it is spent they just don't want us to have it. So they would rather have us with no savings for the future. We need a retirement because I don't trust our government to take care of me when I am older. How can that happen when they tell us all to quit our jobs? No employment, no taxes, no money.It would be so much easier to just have Mike quit his job, but that's not happening from us.
I am trying to keep things in perspective today because Kaidnece's surgery went well. She did great. We are slowly coming off some of her medications and possibly her oxygen in about 2 weeks. We are also pulling up her feeding tube to her tummy tomorrow if she is feeling well. Everybody was so excited to see Kaidence at the hospital. I must say that it was nice to only have a 30 minute wait in the OR waiting room instead of a days wait of long tense hours. We are so grateful for the many ways that we have been blessed and all of the other mumbo jumbo is just me letting off some steam, so sorry. We know that life could be some much worse and that this is nothing compared to what could be. I can't let myself lose sight of that. We have our miracle, how could I ever have the right complain after that?


Megan and Alyvia said...

I am glad that Kaidence's surgery went well. (:
I think you have a right to vent though. It is ridiculous the cost of prescriptions and meds. (Livie's prevacaid was $100.00 for a months supply, I think that is crazy!)
I complain about the costs of Livie's meds...and I'm sure that it is no where close to what you guys are paying for meds!!
I'm glad though, that Kaidence is doing well, we miss you guys!

Crystal said...

Oh my goodness... What a day!!

Noah has to have his levels drawn at 730am (since he takes his Neoral at 8am) and I freak out if they are late. So I am always there at 7 just to give them time. Being that early we usually don't have a problem.

I can only imagine how you must have been freaking out when the IV team wouldn't come.

Wendy P said...

I do not have a clue how all you mom's with special little miracles do it! You inspire me so much. I have had a day of my own miracles with Heavenly Father blessing me, but I can tell you it comes from learning to pray and put things in the Lord's hands. Thank you for teaching me to trust in the Lord. Continue to do that and things will work out - inspite of the very strange medicaid rules that want us to create a generation of people who have nothing to get a little help as opposed to giving a little help to keep us growing stronger. Keep up the great work Kaidence and all of you.

Sam Anderson said...

I wondered if you had been there all morning I'm sorry your day was exhausing. Some of Medicad rules make me crazy too, it makes me want to hide your money for retirement under your bed so they dont know you have any thing in saving, haha that way they cant suck you bone dry. If only. Take care. Melynda

carolyn q said...

I am sorry that yesterday was so emotional and finacially draining. I also got frustrated with SSI in trying to get help when Hope was alive. Her condition wasn't considered life threatning. Ya right? AAARRRGGG!!! Go ahead and scream, you are entitled to it and I will join you.
On the flip side, I am thrilled that everything went well with her surgery. . .other than the blood draws, another AARRGG!
Keeping you guys in my thoughts and prayers.

Anonymous said...

I am so glad that things went well. But what a frustrating day for you.Life is full of so much frustration. Wouldn't you like to go up to the senators and give them an ear full. It just isn't fair that you can work you butt off and ask for a little help, and they tell you sorry we can't help you. But you can sit on your fanny and do nothing and you can get all of the help that you need. Our system needs a BIG makeover. But I also know that the best help that you can have in life is the Gospel. Just keep paying the tithing and doing what the Lord ask and he will provide a way for everything else. I'm sorry that McCaden is sick. I hope that he will feel better soon. I am looking forward to spring. I feel like I want to get out of the winter prison. I'm ready to see some new life start to bloom again. It's wonderful to see how such progress Kaidence has made. Can you believe that she turns 1 this month. what a fun celebration that will be. Take care and our love and prayers are with you all. Love, Aunt Deb

Denise said...

I know the past two days have been very frustrating with medicaid, medco etc. so I hope today is better. We do have so much to be thankful for and have been blessed with many miracles. That doesn't mean that you won't have frustrating days like the past two days, that's part of life. I keep telling you that things will work out with all these expenses, I have no idea how but feel strong it will. Once again trusting in the Lord, your doing your part, he'll make up the rest. Hang in there, Dad and I are so proud of you. You and Mike are doing a tremendous job with everything.

Love - Mom