Monday, September 1, 2008

NO MORE HOSPITAL!

First let me start off by thanking all of you for your prayers and the comments that you leave. We have the greatest family and friends ever and we are always so grateful for all of your support.
Kaidence came home today. Every test they sent came back negative and they sent A LOT. So They figure that Kaidence either has a virus that they do not have a test for OR it all points to her Cellcept drug ( I think that it is the drug). We have been dealing with this vomiting and diarrhea issue since she came home and started full immunosuppression with that particular drug. I have seen the patterns for months and months and have tried getting them to try something different. Today they finally took Kaidence completely off the Cellcept and placed her on a different medication. We will wait and see what happens. The vomiting has stopped (I hope) and the fast poopies are getting better. Her appetite is not the greatest and so I will have some feeds to make up throughout the night. She looks much better and seems very happy. I couldn't help notice that within a few minutes of being home her nose started running pretty bad. So I basically walked in the door and stripped down Kaidence's room and washed all of the walls, floors everything. I hope it helps. She has an air purifier in her room so I am hoping that will help keep the dust down until Friday when the vents are cleaned. We will not be using the AC until then because I don't want to dirty what I have done, in fact the wood shutters that I wiped down on Saturday are already collecting some dust on them. So basically our plans are to keep Kaidence happy, up on feeds and get the house cleaned. She has a Cardiology appointment on Thursday and we should know the results of the 24 monitor that she wore. I am so happy to be home and so happy that I can be there to get my kiddos off to school as well. I just want to be a mommy. Anyhow, once again thank you for all of your love and well wishes and for still checking in on Our Little Kaidence.

12 comments:

angie said...

yeah oh yeah!!!! lets hope this is the end of the pukes! so glad your home, when you want help with the laundry and dusting you know who to call.

Spencer and Becky Wertz said...

I'm glad that she is getting a bit better. Good luck with the house

AMES said...

Oh Shauntelle, I am so relieved to know that you are home. I have seriously been just sick thinking about you guys. I am so glad that Kaidence is feeling better. Give her a kiss for me. I want to help, though. I would love to take a couple loads of laundry or come over for some girl time and help you clean. Please, please, PLEASE call me for anything!! I am always here - love ya.

Denita Skousen said...

I am so glad you are home. We will continue with the prayers and hope that Kaidence will continue to get better. Good luck cleaning your house. Miss ya tons LOL Denita

carolyn q said...

I am glad that you are home once again and I hope that it stays that way.
Keeping your family in my thougths and prayers.

Heart Hugs,
Carolyn

Becca said...

Shauntelle, I'm so sorry about your crazy week. I know how much you wanted to be there for your son for his first week of school. This chronic medical stuff is just as hard on the siblings as it is on the sick child I think. Sometimes I forget to give them credit for how hard it really is. I'm glad that nothing showed up with all of Kaidences tests. Hopefully she'll perk right up with out the cellcept. Jared is no longer on that one either. His BK virus numbers were getting too high so they changed him to a drug called Leflunamide that seems to be helping get his numbers under control. What is Kaidence on now? The first HopeKids activity is on Sept. 27. The web site is hopekids.org if you have forgotten. Hopefully we will see you there! My older kids are really looking forward to it. Hopefully the next little while will be nice and quiet! Hang in there!

paula said...

Hey chickie!

We're still praying for you guys. I'm glad your home. Please do not hesitate to call if you need anything. Love ya, Paula

Mitchell's said...

HI! It's Harmony from PCMC. I had my baby so I missed you this hospital go around! I am glad Kaidence is doing better. I'll cross my fingers that the vomiting goes away and that she starts packing on the pounds again!

Mimi said...

Hi there,

My little Mia is waiting for a heart. I am so glad you are out of the hospital! I can't wait for that day!!

Kaidence is beautiful!!

Gourley Family said...

We came to see you, but discovered you were home! I am so happy that you are out of there! Keep us posted!
Heart hugs,
Emily

Alayna Williamson said...

I still check in on you all the time. I'm glad to hear Kaidence is home and I hope that everything goes well for you!

- Alayna Williamson

LeeAnn said...

I am glad to see that Kaidence is finally home. I hope she continues to do well. We would like to offer you an oppertunity to review the upcoming Baby Signing Time 3 & 4 DVDs that will be released in October. We also wanted to know if you would be interested in reviewing the new DVDs and writing something about it on your blog.

If you are interested in receiving the screeners, please contact contest@signingtime.com with the subject line: Blog review. In the body, please include your full name, complete address, blog URL and phone number.

If you review the product, you also have the opportunity to be entered into our Blog contest, where you could win the Baby Signing Time Gift Set that includes Baby Signing Time 1,2,3,4 and accompanying music CDs. For more information about the blog contest, please visit: http://www.signingtime.com/blog/2008/09/blog-competition/.

LeeAnn
Two Little Hands Productions