I know, I should have posted long ago. The truth is that Kaidence looks so much better and therefore I have been BUSY! Yesterday she had another treatment on her blood. This time everything went much smoother. She started waking up a little more yesterday. She had a very hard time coming off the narcotics and was having some pretty bad night terrors (med side effect). She had no idea who Mike and I were, yet she was yelling for mama and dad. Her blood sugar is getting better and they have taken her off the insulin. As of midnight, Kaidence was taken off the Milrinone (heart failure med that helps your heart squeeze). Her echo today looked the same as 2 days ago, but the doc is happy with that because the one 2 days ago she was on the milrinone and today she wasn't. Therefore, her heart seems to slowly be getting better.
Today, Kaidence is more like herself. She looks pretty dang good in fact. Many are relieved at how Kaidence is turning around. They all said they were very worried. Some nurses called to check on her as well over the weekend. I am glad she is so loved and cared for.
Today we cleaned all the tape marks off her, gave her a bath, did her hair, painted her toes, she has even had a little to eat. She is still very weak and has a hard time walking a few feet, but she will get there. Her poor body is so bruised from trying to get central line access. She does have some issues with the skin around a line that they are closely watching for infection.
So the plan is to do her blood dialysis in the morning. Treatments will continue this week. She will then have another heart cath on Monday to see if the treatment is doing what it should. she will then have 2 days of IVIG treatment.
That's about it for the day. Lets just hope these treatments are working. Thank You for the prayers, if you could see what my eyes have seen this last week... you would never doubt that prayers are heard. I am amazed by her turn around.
Danny's Birthday
4 weeks ago
9 comments:
So happy things are looking up.
When she starts eating just say the word and a PB chocolate shake will be in her hand!
What great news! I can't imagine seeing her fall apart so quickly. I am so glad that she has so many people at the hospital that love her and take such great care of her. I hope that dialysis and IVIG go smoothly so that she can keep on her positive direction!
Oh how wonderful! Great news! Keep us posted Ü
Yay! You are right...some of us nurses were worried about her, and to see her doing so much better is amazing! I will keep thinking about that adorable girl!
Wow...great news!! Praying that the treatments put those nasty antibodies to rest for good!
We are so glad she is improving. What a fighter she is. Don't forget to take care of yourself while you're at it.
Thank you for posting this Shauntelle. I'm sitting here sobbing in joy in the faith and prayers of so many going your way. Kaidence just has a special purpose to teach the rest of us so much. Take care of yourselves and #4. Love you.
So glade to see her doing better! I was worried when we left! praying for good antibodies!
Love the Pattons
We have been praying for Kaidence as a family every night in family prayer. Everyone will be excited to hear how well she is doing! Hope everything continues well.
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