First, I want to Thank everyone for once again praying for Little Kaidence and our family. Your prayers have been felt.
After thinking that we were losing Kaidence on Thursday, I have yet again had much time to ponder. I am so grateful to be where we were, when we were. I am so grateful to have the Dr. P there. I didn't realize until last night that they pulled him out of the ER when K had her episode. However, the moment he showed up I felt so much relief. I totally trust him and he knows Kaidence.
Mike and I were able to get some sleep last night, together on on our twin bed. Kaidence is looking better and this morning she was .......EXTUBATED!!!!!! She is still pretty drugged, but I can tell she is happier.
Her echo this morning showed that her heart is still very big and her valve is leaking a great deal. That however is to be expected. Our hope is that with time and treatment, it will resolve over the next few months. Her labs are looking better. She is still on insulin because high doses of steroids have thrown her blood sugar. She is still on IV meds to help her heart pump. I am happy with her progress, it will take baby steps but we are heading in the right direction now. Hopefully, her heart can make a full recovery.
We will be in the CICU for at least a week, possibly longer. Her next dialysis treatment for her blood will be tomorrow morning. We are praying that these dang antibodies will go away and that these treatments will help
Thank you again for everything. Our hearts are full once again.