Thursday, August 5, 2010

ROUGH NIGHT.

Today has been rough. Much rougher than any of us expected. How does a kiddo go to the opposite extreme so quickly? Honestly, it terrifies me.

The attempts for the PICC line in her arm failed. She came back to the CICU intubated. She has been miserable and has fought the breathing tube all night. That breaks my heart watching her coughing, crying and not being able to hear her. Tonight they placed a line in her groin and planned to extubate after. However, as I waited outside her room her heart rate and blood pressure severely dropped. As I could hear them rushing around for emergency medications I was told that Kaidence was seriously ill and that I should go and be by her bedside. Mike was on his way to the hospital after grabbing our stuff from the cabin. I buried my face into Kaidence and once again found myself pleading with Heavenly Father to let me keep my baby girl. I know that ECMO was briefly discussed. Kaidence's HR and BP have are looking better at this moment.

The biopsy came back and unfortunately Kaidence's rejection is with her antibodies. This is what we did NOT want. The plan was to start her blood on dialysis tomorrow, but because of tonight's episode they are starting tonight. In fact, in a few minutes. PLEASE PRAY for kaidence. This treatment could once again drop her BP and its already low.

For now I think that is all. I am exhausted and figure we still have a long night ahead of us. This brings back too many memories and emotions. I am scared, I am sad, I love my little girl.
Thank You all for loving Little Miss K!

17 comments:

The Boys Rule said...

Hang in there Shauntelle. You are in our prayers.

Jenn said...

Thinking about you every minute, and saying prayers for you. Love that little girl.

Jen said...

Shauntelle, I am praying for you and Kaidence tonight. I think of you so often, and always follow your blog. We just have one of those bonding things eh? No matter how long it's been, always know I'm out here cheering you guys on. I love hearing when kaidence is doing well, so I hate to hear this. I hope you are able to feel some peace and get some rest tonight.
Jen,
Luke's mama

Melynda said...

=( my heart dropped hearing the news! I was really hoping "Napoleon" was not going to your room! We're praying hang in there, let me know if you need a shoulder I'm around the couner!

Praying for you guys! <3

Michelle said...

Shauntelle...
I am shocked and scarred. What happened? How? When? Why? While my mind is racing with so many questions, those can wait.. we are here and praying for Kaidence. If it helps, you will have another heart mom up with you tonight. I'm not going anywhere.

We love you and love Kaidence.
Michelle (Madison's mom)

Kelly Potter said...

I have always followed your blog. Your sweet girl reminds me of my big girl-now 5. No Berlin Heart-she was not a candidate- but almost a month on ecmo before transplant. Please know that rejection CAN be treated and we can pray to God that it is his will that the rejection WILL be treated!

Hope's Blog said...

Praying like crazy for you and Kaidence.

shericelarsen said...
This comment has been removed by the author.
shericelarsen said...

I've been glued to my computer since yesterday waiting for updates!! We love you all so much and are praying for you all. We love that little girl so much!! We're here for you!

Becca said...

Shauntelle, we are praying for you and Kaidence. This transplant journey is such a roller coaster ride! Kaidence is such a fighter and they have such amazing ways of treating rejection. Hang in there! Angels's are watching over you!

The Simmons Family said...

We have been thinking of you guys and we continue the prayers. I am so sorry that she has to go through this.

Michelle said...

Your post brought tears to my eyes. I can feel your pain. So sorry your baby girl is going through this. I will pray hope and also plead to God for your daughter.

Michelle
www.withallmyhearts.blogspot.com

Quinney Family said...

Praying for all of you

The Curtis Family said...

Oh my Goodness!! I just checked your blog and I am so shocked! You will all be in our prayers. PLEASE keep us updated.

Hugs!!!!!!
Allison

Family Scads said...

Lots and lots of prayers for all of you! I'll also call the temples out here and have her name put on the prayer rolls!

Carol said...

Oh Shauntelle! I am so sorry Kaidence and your family have to go through this. You are all in our prayers, especially sweet little Miss K. Hang in there.

Liz said...

My prayers and thoughts are with you.