Thursday, August 4, 2011

Rejection...again?

Seriously? Was it not a year ago to the date that Kaidence was admitted for rejection? Well yes it was and guess where we are tonight.....yep, and for the same thing. Next year our family will be skipping this week on our calendar.

Today was a normal clinic visit and she looks great, but her echo didn't. Her heart valve is leaking more, her EKG showed low voltage. Both signs of rejection. Her BNP is a little high but not as bad as last year.

The plan is to do another heart biopsy at 7:30 AM tomorrow. This will let us know if she has rejection, what types and how bad. We don't think it will be as bad as last year. I pray it is not, I keep recalling her suddenly being so sick, all the panic from the doctors and nurses and thinking I was losing her. I don't want to be told that I need to go and talk with my daughter by her bedside in a moment that they would normally kick a parent out of the room because she was so sick. However, I am forever grateful that they gave me that opportunity....just in case.

The other thing that this heart issue could be from is a her leaky tricuspid valve. Remember the valve that was damaged a few years back? Well, it's been getting worse and may need replacing sooner than later. We may know more info on that tomorrow as well. So for tonight we wait, prayand count our blessings. Tonight she is getting IV steroids and we will pray that tomorrow goes smoothly.

Thank You for all your love and prayers. If you need us we are in room 3084 at the house on the hill.

8 comments:

Emily@Little Forever Family said...

Geez! I hate that you guys are there! Hang in there. We will be praying for you guys to get better, get home, and back to your family. Is there anything I can do? Please let me know. My boys love having friends.

ParkerMama said...

Hoping that tomorrow goes smoothly and brings the best news possible.

xoxo

Tammy and Parker
www.prayingforparker.com

Aimee Hardy said...

So sorry you are back up there. Praying for good news in the morning.

Michelle said...

Shauntelle and Kaidence,
We love you and will be keeping you in our prayers. Please keep FB posted. Thank you for your example of being an amazing, strong heart mamma! I appreciate you!

Summer said...

We are praying for Miss K and your family today............sending lots of love and hugs!!!!!!

Hope's Blog said...

Many prayers coming your way. I hope you have more answers this morning.

Christina said...

Ugg, I am so sorry. Sending hugs and prayers your way!

ang said...

Oh no! What tough news! We echo the previous posts and wish you well for some good news today with the biopsy. Hang in there; Kaidence is amazingly strong. It will be ok. We're coming up on Monday for oncology treatment, if you're still there we'd love to come visit and can bring up anything you need. Call or text 801-814-9110, happy to help and we'll pray too, of course.