Sunday, November 27, 2011

A Little Update and DON"T FORGET..........

I truly am so sorry for going this long without posting. Just consider that no news is a sign that things are still the same. I want to write a post all of its own for our Disney World trip. We went from November 1-11 and had a wonderful time. I am so glad we went the week we did because they said that from that point on it will be crazy! We had a pass for Miss K, this allowed us not to have to wait in the lines for rides. That was such a blessing. We left our little Carden home and took the two older boys and Miss K. I will try posting a video from when we told them we were leaving.....It's so funny! I will post about ALL we did (and we did a LOT) another day. Thank You Nanna and Pappa for taking us on this dream trip......we had a MAGICAL time.

Now that we are home we have been busy getting ready for Christmas. All of Disney World was decorated for Christmas. We even went to the Mickey's Very Merry Christmas party. It was my favorite part but then I came home to Halloween decorations still up. I took care of that pretty quickly though.

Kaidence seems to be doing well. The last day of the trip Kaidence was pretty sick with Influenza. She had a terrible cough, sore throat, headache, body aches, fever, chills and was extremely fatigued. She wouldn't walk at all. We were worried as to how we would get her on the plane and endure a 4 hour flight. She looked terrible. WE picked up some Tamiflu in Florida and Mike gave her a wonderful blessing. Within a couple of hours Kaidence was up running around and you would never have known how sick she was. How grateful I am for the power of the Priesthood in our lives.

K's cardiology check ups have been stable. Last week we had some scary heart rhythm issues but they seem to be resolved. We should have the final report tomorrow for the 24 hour study we did. Kaidence has been in the transplant list for 31 days! I am so grateful that we could spend 11 of those days on vacation and making beautiful memories that we will have forever. Everyday, K asks me when she is getting her new heart. She says she needs one soon before her heart gets too sick and then she will have to go to Heaven. She says that she wants to stay here with us. That little girl is so smart!

We are so grateful for many things. How blessed we are to be waiting for a new heart at home. Hopefully that can continue. We are grateful that Heavenly Father is in charge. He will orchestrate the plan that He has for Kaidence.

Our hearts are once again touched by the many that have reached out to support Cupcakes for Kaidence December 12th and the Creative Arts Academy Benefit Dance Concert coming up this Saturday December 3rd! Both events will be amazing!!! I cannot believe my family, friends and the community that has put all of this together for us. Many have not even met Kaidence. We were so surprised to learn of all these things that have been put together for our Kaidence. When I was told to watch how many windows would open for us I had never imagined anything like this.


Happy Thanksgiving! Mike, myself and the boys have had a wonderful Thanksgiving together. We woke up and drove to the hospital to see baby sis on our way to Coalville. It was wonderful to see all of our family and it was fun to spend family time with the boys. They had fun taking the 4 wheelers over to the "farm" to see all of Aunt Karen and Uncle ken's animals and of course the big tractor. Dinner was wonderful as always. Mike and the boys are going up to Ogden to spend the night with all of the cousins. I have stopped by the hospital to spend some time with Kaidence tonight.Kaidence is very swollen tonight and I hope that they can get that under control soon before we are dealing with wet lungs on top of everything else. She has had a fever again today. Her white blood count only dropped from 22.1 to 21.6 and the CRP 7.2 to 7.1. I think I was hoping for a bigger jump like we had the last few days. The other cannula site is starting to look more infected and I think they will clean that out as well tomorrow. I am praying that we can get this infection cleared fast and that nothing else is affected by it. We can't re-list Kaidence until her wounds are healed which could be a couple of weeks. Not sure though because I have not spoken with Doctor Everritt for a couple of days and we are not totally sure what her thoughts are. We had hoped to speak with her before Thanksgiving so we could at least know what the plan was and what we were looking at so that we didn't have to wonder and worry all weekend. The little glimmer of hope that we could possibly all be home together for Christmas is gone so we will find a way to make due. We have so much to be grateful for and I could probably write a whole blog on this topic. However, we are so Thankful for the wonderful support of all of you. We honestly could not due it without all that you do. Thank You for following the blog and caring for us. We are grateful to the many nurses and doctors that take so much time caring for Kaidence. We know that they honestly do the best they can and that they want what is best for our little one. Of course, we are so grateful for the gospel and the unconditional love of our Father In Heaven. I have seen more families here turn back to the gospel after their kids have become ill than one would ever imagine. Trials can teach us so much, but only if we let them.Happy Thanksgiving and we love you all. Savor this time of year and hold your loved ones close. Spend more meaningful time with your family then ever before and get back to basics. In the BIG picture it is all that matters.


Petersen Palace said...

so glad you got to go all the way to FLORIDA! Little Kaidence is quite the fighter. Good luck with everything and enjoy your cupcakes this weekend! I would love to come but can't risk the germs. Would it be okay if I shared the event on my blog? Maybe you'd get a couple people from there.

Petersen Palace said...

here's a little post in support of your sweet girl. Check it out. :) I'm so sorry you have to start all over with this adventure!