GRACIE'S DAY!

Gracie and her family have a tough day ahead of them and my heart breaks for them. It hits too close to home and I struggle as I watch what these families are going through. This is the same scenario that they planned for us to be in with Kaidence when they talked about placing her on ECMO and taking her off if she had not recovered in a week. The peace of mind that comes from it is knowing that as a parent you did all you could to save your child but that it is now out of your hands. They will trial Gracie off of the ECMO today around 2pm. If she does not hold her own they will then let her pass away and return to the welcoming arms of her Father in Heaven. Sometimes it takes these sweet and innocent little ones to teach and remind us grown ups of life, its TRUE purpose and what should truly be important to us. Family, Friends and Faith in Christ. Please pray for Gracie and her family. I thank our Father in Heaven many times a day for my miracle - Kaidence.

KAIDENCE CAN'T MAKE UP HER MIND!

You all know that Kaidence's wants to give the docs a run for their money (and trust me they should be doing A LOT of running.) Today was Cardiology, her heart looks great. It is just the white count. However, today we have the extreme opposite problem. Kaidence's white count including her ANC is much TOO HIGH. This of course is cause for concern. They are not sure how much is the shots(last one given Thursday) and how much is a sign that she may have an infection brewing. So her total white count was around 24-25 (24,000-25,0000.) Normal ( for a person not immunosuppressed should be about 15 (15,000). Now her ANC count. Her ANC was 12 (12,000) and for a normal person should be 5-6 (5,000-6,000). They took blood cultures to check for bacteria infections because she is making a bunch of ANC Bands (Baby ANC) which makes them think that the mature ones are off fighting something in her body (hopefully not her heart.) It's not good having a kid with suppressed white count to protect her heart have so many WBC. I know that she is starting to get a cold and that could add to things, but most likely not that much. We are all starting to feel a little under the weather here and Kaidence has started getting a cough. Last night I thought croup was starting to come on but we will see how tonight goes. Anyhow we are all hanging in and we will wait and see what the blood cultures bring.

Please continue your prayers for sweet little Gracie. Her family is amazing!

BABY GRACIE UPDATE!

Family and friends. We wanted to let you know that things with Baby Gracie are not going well. They have decisions took make that no parent ever wants to think about. Please remember them in your thoughts and prayers. Hold your little ones, for I know that they wish they could hold Baby Gracie. These situations make things harder because often these heart babies are too fragile to hold until they get better or the time comes that you decide to let them go.
Baby Gracie is another reminder to us all of the love that Heavenly Father has for us. I know that Gracie has absolute peace and comfort about what lies ahead and I know that the Lord will bless her family as well.

CARDIOLOGY UPDATE!

Cardiology went well yesterday. Her echo looked great, despite the fact that she threw up all over the place during it. Kaidence's s ANC was up to 1 (1,000) with the help of the Neupogen shots that Mike has been giving to her every night. The doctors are pleased. Last night was the last shot he had to give and they will let her go on her own this weekend. We will see what happens next week. I am not a fan of the waiting game. Kaidence's cath and procedure on her LPA are coming up as well. We were able to finaly meet little Noah. He is another transplant kiddo. I loved talking with his mom. It makes you feel like you are not alone as you take this new road in life. He is such a cutie. His blog is linked to mine off to the left side of the page.

Please remember to pray for Baby Gracie!

PRAYERS FOR BABY GRACIE!

I am once again asking for you to pray for another heart baby. Little Baby Gracie. I have been following the blog that her parents started for her during the pregnancy after being diagnosed with HLS. She has been born, had her first surgery and run into some complications. Please pray for this sweet little one. I have added her link to my blog. The feelings are too close to home and I know that the peace that can be given to them through the prayers and fasting of others.

"SIGNING TIME" VIDEOS ANYONE?

Early Intervention came out to the house this afternoon and will start working with Kaidence next week. We need to teach her sign language to help with her speech. They said this will help with the fact that she does not talk and will help her start to verbalize things more. They told me that the "Signing Time" DVD's were great to use to help teach Mike and I as well as Kaidence. The problem is that the DVD's are tooooooo expensive for us to buy. Does anyone out there happen to have a few that we can borrow while we learn to sign? If so we would greatly appreciate it. Thanks a bunch!!!

LOW ANC AGAIN!

We spent the day yesterday in Cardiology, 8:00-6:30. Kaidence's ANC is back down to .1. We were waiting approval for Kaidence's Neupogen shots that we now have to give her once a day. If her counts aren't up on Thursday bone marrow will supposedly be done. Other than that, she looks great. Early Intervention is coming today to work with her on her physical therapy stuff.