GETTING IT TOGETHER!

Kaidence is very happy. We washed her hair the real way today, meaning not with a wash rag only. We stuck her head under the faucet like we used to do and she loved it like always. I forgot that her hair could actually smell good. Her brothers continue with the nasty cough but I think that we have kept them away from Kaidence pretty well. I have been trying to finish organizing all of the odds and ends like updating the diaper bag so that it doesn't have size 1 diapers in it and old formula. I have a lot of equipment that I have to take with me wherever we go.

Tomorrow we have our first Cardiology appt. as well as an echo, x ray and labs. We also have an ENT appt. for her swallow test. I am not sure that she will pass, but I think that we have made a lot of progress. She needs less and less suctioning and about 4 times today I have heard a loud gulping swallow from her. I have also noticed that she doesn't have the loud obstructed airway noise she used to make while sleeping on her back. I also got Kaidence to suck her Binky today. Now any of you that know me know that I am Anti -Binky past about 6 months of age, but they think that it will help Kaidence with her swallowing and learning how to eat again when the time comes. We tried giving it to her in the hospital and she acted like she had no idea what to do with it, but now she does. Hopefully things will go well. Oh by the way, the article in the newspaper isn't out until Thursday.