I know that it has been awhile since I last posted however things seem less dramatic now that we are home. Obviously we aren't doing CT's and test and surgeries everyday. However, it doesn't mean that things aren't a little crazy at times. Kaidence is getting better at eating it seems. She really likes the berry banana baby food. We tried a bath in the sink because she still has that line in her chest that can't get wet. She smells much better. I was surprised last night when I bent down to kiss her toes and they smelt like stinky cheese. Pretty bad for a kid that doesn't wear shoes. Obviously, the sponge bathes we have to give her aren't cutting it. No matter how hard we try I don't think it's as good as hosing her down with a good lather. I think that we have more teeth on our way in. One of the medications she takes makes her gums thick and so she will have a harder time teething, but that's ok. Teeth are nothing compared to what she has already done in life. One thing that I am finding with Kaidence is that she is maybe too content? She is ok with laying down on her back and playing all day long. Well, that is what she has done for half of her life. I am really trying to work with her on sitting. She also wants nothing to do with bearing any weight on her legs. We can't work with her too much until her chest has the full 6 weeks for the bone to heal. I am worried about these things and we do have Early Intervention coming out to work with Kaidence and evaluate her on the 4th of February. I feel like I am spread a little thin trying to make sure that the everyday things get done, each kid feels loved and their tummy full and then working with them on all of their little individual needs. However, it is so much better than trying to do it all from a hospital room. Mike is starting school again the first week in February and that will be interesting, but that is life. We are very happy that things are going so well. Kaidence's appt. went well also and we are still playing with her meds because some of the blood levels are not where they should be. Things are looking good with our family and I am looking forward to spring and getting out in my yard again. I think that I will have a lot to do this year, things were rightfully neglected last year. I am excited to go into a time of year with a fresh start, rebirth. I had such a hard time this fall when Kaidence was getting sicker and everywhere I looked around everything was dying for winter. It just felt so hopeless. Thank Heaven for new beginnings!
18 hours ago