Here is a quick update as to the happenings of Kaidence. Yesterday cardiology called and asked if we could bring K in for another echo today. Dr. E was a little concerned about the gallop she heard at the last appt and wanted to make sure her heart was not getting sicker.
Today I hauled all four kids to cardiology.....enough said. K's echo still looks the same. At least it's not any worse. Dr. E said that she doesn't expect an improvement in her echo YET. It will take more time. Bummer part was to hear that she has a slight decrease in heart function on the left side. This is a first for this side of her heart. However, it could just be the rejection and it's not a big decrease. It's still functioning within normal range, just not as 'snappy' as it was. The gallop that was heard on Friday, has improved. It's still there but not as frequent. This and the decrease in HR at night is a good sign that we are heading in the right direction. If all continues to go well, we can treat this episode at home. If things don't clear up then we will go in for IV steroids. We will have an appt Monday and see how things are looking. Oh how I would love to hear that her echo shows signs of improvement. That would be WONDERFUL! It just seems like ever since last August...the road has been a little bumpy. Never getting back to where we were before the rejection. Not complaining at all, but I would love for that smooth sailing we had going on for awhile there. Loved it!
Kaidence otherwise is doing well. These steroids put the spunk in her. They make her crazy happy. Crazy like she is on something that she shouldn't be. She is bouncing off the walls, teasing her brothers, running around. She thinks everything is hilarious. She is somewhat of a handful. She will sure miss her brothers when they go back to school Monday. I think I'll be playing a lot of Barbie's.
We will keep you posted. Thank You for all you do for our family. We are grateful for YOU!
Danny's Birthday
4 weeks ago
4 comments:
I am just getting caught up on everything. Bumpy is a kind way of putting it, I would call it "falling off a cliff and getting slung back to the middle repeatedly"! I can only imagine taking 4 kids for an echo. You are so brave and doing such a great job! I am glad to hear her white count is up and hopefully continued steroids will kick this rejection quickly! Hugs!
I'm so glad she got her soldiers back and you are able to treat the rejection. That is so stressful. Praying for an even better echo Monday
We will be praying for continued improvement! We had a scare with Jared's white count 2 years ago. Luckily things turned around but I told the hematologist that I wasn't about to visit his office again! :) Hang in there! Hopefully we'll run into you again soon. Kaidence looks so big!
I am so glad that things are at least stable for now. Hope that things will keep improving. I heard the peanut butter cookie story. She is so creative to get something that she wants. Love to you all, Aunt Deb
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