PLEASE KEEP PRAYING!

Well I thought that Kaidence was holding stable but apparently I was lacking some information that the nurse never passed on last night like the fever and the more frequent extra heart beats. Dr. Everritt came in today and discussed some concerns regarding changes in Kaidence over the last 24 hours. She is trying to get a game plan together in case Kaidence continues the path she has apparently started. We discussed ECMO (heart & lung bypass machine). We halso discussed the "Berlin Heart" (left ventricular assist device). This would serve as a bridge to heart transplant. However, Primary Children's Medical Center has never performed the surgery or cared for a baby with this device so the hospital has to decided if they are ready to take that step. They would have a team of surgeons that would fly in to help perform the operation. If Kaidence does need this device to buy her time until she gets a heart and PCMC won't do it we will have to pack up our little family and move away. Time is running out and we need a heart! And we need it soon. Unfortunately that is what it comes down to. Please pray that what is meant for Kaidence can be. We are watching all of her cultures and her fever that continues off and on. She can't get an infection because if we do and she gets a heart offer, we won't be able to take it. I feel so overwhelmed. Life continues, sometimes I wish the world could slow down so I could get caught up.