Saturday, June 28, 2008

WE LOVE BEING HOME!

Yes, we did make it home today. I think the doctors are surprised at how well Kaidence is doing. First if all yesterday her daddy and brothers came to see her. I was standing with her outside her room when her brothers and daddy came walking down the hall. She was so excited to see them. Then when went to put her in the car today to go home the craziness came out in her and she was thrilled to be in her car seat. Her little legs were kicking faster than ever and the cute little noises she was trying to make just confirmed to me that yes, despite all that my little Kaidence has been put through she has a very happy, joyful and fulfilled life with her parents and her brothers just like the blessing Elder Zwick gave her back in October said she would. Kaidence is eating very well, in fact better than ever. She has had 24 oz of her Pediasure today so far, some tiny meat pieces and part of a vanilla waffer. Just the Pediasure itself is a record for her and a first. We will likely use her G-tube tonight for only one more feed at about midnight. It is great to be able to give all of her med through it as well so that she can have some positive feeding experiences instead of the negative. It is so hard to get her to take 16 syringes of medication a day. The fast poopies and vomiting have stopped. In fact she has not thrown up for a few days so she is finally over the virus. Her vocabulary now consists of " mommy, daddy, nanna, papa, RyRY (my niece Ryan). We are all happy to be home TOGETHER and I will go back up to the hospital tomorrow night for her sleep study. It is only one night, I can handle that. Thank you for your prayers, phone calls and comments.

8 comments:

Denita Skousen said...

Glad to hear you made it home. Good job Kaidence keep up the good work!

Gourley Family said...

What a darling little girl! I have no doubt that she is full of life and love. I was talking to Carolyn last night about how wonderful you are Shantelle. I was talking about the sweet memories that we have of Primary's and seeing you and Kaidence every day. I am so happy that she is eating well and learning so many words! Good luck with the sleep study!
Heart hugs and continued prayers,
Emily and Mike

Dixie said...

Way to go Kaidence!!!! You are a very special spirit. We are all so glad you are home again. Hope all keeps going well. Love, Aunt Dixie

summer said...

Yeah for Kaidence! Hopefully from here on out all will be up hill for your beautiful family. She needs to chub up now so I can send some more clothes your way! Love summer and family

Debbie said...

So glad that she is home and doing better. Keep up the eating Kaidence. Our love and prayers are with you all. Love Aunt Deb and Uncle Larry

Megan said...

I still check your blog all the time. Glad that you guys are going home! Way to go Kaidence!!
We miss you guys and love you guys!!

carolyn q said...

Oh, I am so glad she made it home and that she is happy and eating so well. I pray that it continues. What a little sweetie pie!
Was you nose itching the other night while Emily and I were talking about how wonderful you are?

Heart Hugs,
Carolyn

Likes Chocolate said...

Congratulations!!! I am glad she is doing better.