WE LOVE BEING HOME!

Yes, we did make it home today. I think the doctors are surprised at how well Kaidence is doing. First if all yesterday her daddy and brothers came to see her. I was standing with her outside her room when her brothers and daddy came walking down the hall. She was so excited to see them. Then when went to put her in the car today to go home the craziness came out in her and she was thrilled to be in her car seat. Her little legs were kicking faster than ever and the cute little noises she was trying to make just confirmed to me that yes, despite all that my little Kaidence has been put through she has a very happy, joyful and fulfilled life with her parents and her brothers just like the blessing Elder Zwick gave her back in October said she would. Kaidence is eating very well, in fact better than ever. She has had 24 oz of her Pediasure today so far, some tiny meat pieces and part of a vanilla waffer. Just the Pediasure itself is a record for her and a first. We will likely use her G-tube tonight for only one more feed at about midnight. It is great to be able to give all of her med through it as well so that she can have some positive feeding experiences instead of the negative. It is so hard to get her to take 16 syringes of medication a day. The fast poopies and vomiting have stopped. In fact she has not thrown up for a few days so she is finally over the virus. Her vocabulary now consists of " mommy, daddy, nanna, papa, RyRY (my niece Ryan). We are all happy to be home TOGETHER and I will go back up to the hospital tomorrow night for her sleep study. It is only one night, I can handle that. Thank you for your prayers, phone calls and comments.