We have had a very busy week. Kaidence has been sick again and has really started to worry Mike and I. She has been throwing up and not eating since last Wednesday. Her Immunosuppression levels are too high as well. She just is not herself at all and seems so sad. The doctors are not sure what is wrong. I called today and asked that her Thursday appt be moved to tomorrow. I am worried about rejection but most likely because I am just a worrier. Anyhow, they have also decided that Kaidence will need to have a g-tube placed because she has continued losing weight ( I think she is down about 3 lbs from her heaviest weight at home). The feeding tube in the nose has started to aggravate her and has kept her eating anything by mouth. She won't even take milk or any liquid. She has had the tube for just about a year and they think that the tube has caused her too many oral aversions (exactly what I have been worried about all along). We will see tomorrow when they will take her in for that procedure. I have told them to do whatever they need to do so that I can have Kaidence healthy and happy again. She looks too skinny. They also cut down the dose of another medication that was just recently added back to her medication schedule. I am hoping that will help. She seems to do better on less immunosuppression. Your prayers would once again be greatly appreciated. I will update tomorrow.
6 hours ago